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British Lung Foundation
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Does anyone have Parkinson's

Parkinson's disease I've just been told I may have Parkinson's on top of my end stage COPD has anyone else been in this situation thank you all very much I am dictating this as I have too much shaking so cannot write please forgive me

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There is nothing to forgive foxyeric. It’s a no from me for either condition. Sorry to hear you have too much shaking and I hope things improve for you and they can help to improve things for you.

Love cx

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Hi foxyeric like cof said there is nothing to forgive. Depending on what device you are using you may be able to convert it to speech rather than type.

I think having very severe copd is plenty to be going on with let alone having a diagnosis of Parkinson's on top and I am very sorry that you have both.

Stick with us though as we are one big HU family and all help and support each other. x

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Hi Foxyeric. You're reminding me of my Dad, who was called Eric too. He developed Parkinson's on top of quite tricky asthma and brittle diabetes, type one. His hand/foot shakes improved a lot with tablets...which ones escapes me for now. He was in his early sixties when diagnosed but lived until he was 86. His mobility did eventually become a problem but not until he was about 75. It was vital that he took his meds on time, which wasn't easy in hospital, of all places!

Good luck, Eric, and I hope medication helps you too.

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My brother has it, was diagnosed about 2 years ago. He has medication and has a nurse he can contact He has the shaking hands and reduced mobility . He was told to keep moving and get plenty of exercise and he does. Luckily he doesn't have any lung conditions on top and he seems to stay fairly stable. He's in his early 70s. Hope your condition does not affect you too much.

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Hi my mum has Parkinson's but not any lung condition.She's had it about 7-8 years. She has a Parkinson's nurse who looks after het meds etc. I think with Parkinson's getting the meds right&taking them at the proper tomes are a big thing.My mum is still mob&does everything pretty normally...she sometimes needs help getting her clothes/shoes on&says the thing she finds hardest when out is people walking towards her quickly as she can't move out the way as quickly.She used to fall over quite a bit but they've changed her meds and she hasn't fallen in a couple of years now.

Meds really can help a lot...please don't despair!! I know it's not a nice one but there's a lot of support out there&here!!!

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Thank you all. It was kind of you to take time to read and reply to my Question.

I do find it difficult to deal with both COPD and PARKINSON.

however I will start to change my direction.

Thank you

Eric

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Parkinsons is now strongly linked to vitamin B12 deficiency. Though beware there is a grey area in the bloods that more than often gets over looked.

Take a look at Sally Pacholok's Book 'Could it Be B12 ? An Epidemic of Misdiagnosis'

The Parkinson/Vitamin B12 link is mentioned on several occasions through out her brilliant book and listed in the index pages at the back of the book.

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Will do thank you very much funny as I was B12 deficient about 3 years ago jesper

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Interesting, but not surprised you HAD B12 deficiency 3 years ago.

Go onto the community site here on Health Unlocked called PAS (Pernicious Anemia Society,) which is for those who have low/deficient vitamin B12 and they can help you forward. If your B12 blood is checked, dont accept 'Oh! that's a good enough result for someone who has Parkinsons' If it is low or deficient again it needs to be sorted as it can be part cause of Parkinsons, (read in Sally Pacholoks book, Could it Be B12 Deficiency.)

Also just a thought - hopefully you are not taking any statins ?

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Thank you will check out eric

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