British Lung Foundation
35,854 members43,168 posts

I love My Valves

Just an Update. As Time passes, I am Breathing Better and able to Turn the clock back a Little. I can do a lot more without my Oxygen and so happy to NOT have to sit down constantly to catch my Breadth. Yesterday, I didn't use my Oxy once and even slept last night without it, I did have the Condenser on and Cannula ready, Just in case. This Morning I'm in a Garden Sunbathing Mood, Under the Parasol though. I keep tapping my chest and saying Thank You to my Shiny Blingy Valves, What more could a Girl Want.. ( well, Lungs. yes). But for Now I'm happy with my Lot...Wishing you all a Great Week End. Love n Hugs. xxxxx

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That’s wonderful news Carolina and I wish you a great weekend too. Glad you’re doing so well. Xxxx💖🌞🍦

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Thank you Carole xxxxx

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So what did the doctors install her

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Hi Bill, I had 4 Valves inserted to my Right Lung on 7th June, Now I am feeling very Good. XXX Carolina xxx

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What a lovely post to wake up to. I'm so happy for you. Better than a lottery win. Enjoy your weekend. Jane

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Thank you Chubby, I agree, but I wouldn't refuse "Someone Knocking on my Door". xxx

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It's lovely to hear how happy you are, long may it continue. Enjoy your sunbathing in the garden, have a lovely weekend. Love and hugs to you.😊 Bernadette xx

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Thank you Bernadette. XXXX

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Absolutely brilliant 😃so pleased for you. 👍Lovely to hear some positive news, onwards and upwards ! Enjoy your sunbathing 😎don’t overdo it and make sure you drink plenty. Gin is good ! 🍸take care. X

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Ha Ha , Thank You Hun, My Drink is Vino, Pink, The Happy Glass. XXXXX

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Pink vino good. Have you tried mavrodaphne ? It’s a sweeter red, delicious ! X

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Today is a good news day. What a great start to the weekend. I hope your improvements continue to get even better as you can now exercise more which will bring those improvements to you :)

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Thank you 2 greys, Yes, I aim to exercise more, have my Fit Bit on throughout every day. XXXX

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WONDERFUL!

And so encouraging for others in a similar situation 😃 👍 ❤️

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Yes, Peege, I know AlfieBax2(Babs) and Skis are next to hopefully have the same Procedure. xxxx

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I feel your joy 😍

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I too am going through the tests to hpefully eventually have valves. You certainly make it very appealing

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Morning Maggie, I was a little Scared on the day, not knowing, but I had read many good reports on here from other People who had them, which I hope I have passed on, so many of you may now feel less apprehensive and more positive. Good Luck Maggie Love n Hugs xxxxxx

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That is so good to hear Hacienda. I don’t know anything about the valves and so I am very interested in your experience. I do hope that you continue with even more improvement. X

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Hi Littlepom, I do read your very interesting Posts. Thank you, Click on my Profile for previous News of The Valve Procedure. xxxx

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Brilliant news! Just what we love to hear, thanks for letting us know. Enjoy your relaxing weekend in the sun⛱.

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Thank you Magpuss, You too have a great Weekend. xxxx

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buenos días cariño otro buen día te espera,a very positive and bouncy message to all though do be careful when you venture outside amongst the general public.tapping ones chest and saying thank you to it may attract the wrong sort of admiring attention and i fear not from gentlemen considering valve procedures.Enjoy your day together with your new bling chums..............love Ski's and Scruffy xxx

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Buenas Dias tambien Carino, 😂😂😂,I will be very careful who sees me. Ha, yes, I thought I would cheer everyone with my light hearted Bling. Hope you & Scruffita are coping with this Heat

I tend to go in the Garden with the Papers, do half a puzzle and bring myself back indoors, it's all part of the exercise routine to put Steps on my Fit bit. Light lunch soon, hubby at work soon serving all the Football 🍺🍺🍺🍺supporters. Me, I'm off in the Sun lounger with Glass of Pink Stuff. Ha ha, my Princess by my side. 🍷🍷🍷🐕🐕🐕.Hasta Luego no Amigo. Besos. Xxxx

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My dear Carolina.

You have no idea how very happy this post has made me feel. I am so pleased. It really made my evening.

*Hugs*

Cas xx 🌸

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Morning Cas (Caspiana), Just seen the News this Sunday Morning, The Floods in Japan have taken a lot of lives. Hope your not in that area. let us know how you are. Love n hugs Huni. XXXX

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Hi Carolina.

It rained very hard here , but we did not have flooding. Very thankful but very sad for those who were not as lucky. Thank you for asking. xx 😊

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Thankful that your OK Cas, very sad for those who have lost their Lives. RIP Angels. xxxx

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Awww, Thank You Cas, I'm glad it made you feel Happy. I hope your well as you can be. It is evening here now almost 8pm. The Weather is still very very Warm and a bit humid. Never mind, it has been a lovely day. Enjoy the rest of your Weekend, Huni, Love n Hugs. xxxxx Carolina XXX

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I am so happy for you and sure hope you continue to improve.

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Thank you jackdup. xxx

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I'm so happy for you, it must be wonderful to feel such an improvement. I do hope you continue to feel better. I'm so jealous 😘

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Hi Pat, Thank You, Yes, It was a Good Choice to go Ahead, I'm still on the Transplant List, have been for two Years now, this is a happy Interim to help with my Shortness of Breadth which had got so bad. They Last Two Years, in case I don't get my Transplant call. Hope your Heat is not Wearing you Down, we had 30 yesterday and I must admit all my Years in Spain in 40 /45 degrees hasn't given me resilience to this Heat. Still, I'm loving it under the Parasol. Vino in Hand. Love n Hugs Huni. Carolina XXX

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I'm so pleased you are happy with your valves and they seem to be working for you .Don't overdo it and I hope you continue to improve daily .Wishing you so much love

Babs xxxxxxx♥️♥️♥️♥️

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Awww, Thank you Babs, Your turn will come soon, Love n Hugs to you my Dear. XXXX

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❤️❤️❤️❤️❤️🍸

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That's brilliant Hun, so happy for you !!! Bet it's like having a new start !!! In,actually find out on Tuesday if I am suitable for valves , and I'm feeling quite nervous at the moment !!! You have really give me hope thank you ,bless you xxx

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Hi Hun, Yes you will be Nervous as I was, I was "Borderline" but they still put 4 in instead of 2. Took 33 minutes they tell me, Woke up great and with time it gets Better. Good Luck xxx

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Fantastic, well done! x

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Thank you Kate. XXXX

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best news to wake up to Carolina 😉 well done for going through all op side of things x yep this heat is a bugger and very restrictive but onwards and upwards x keep posting and congratulations 😉😉👍🏻

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Thank you, Yes, I can cope with the Heat in the shade, it's when the Humidity rises, then Like everyone else , it takes your Breadth away. Will keep you all posted. XXX

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This is great news!! I wish you well 💕

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Thank you Mas. xxxx

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Happy for you. 😊🌻✌️

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Thank you so Much. XXX

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I'm so pleased to hear all that positivity. You are an inspiration and so strong. All the very best for your future

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Thank you so Much xxxx

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Great to hear news of your progress.

Keep up the good work

Best wishes

Corin

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Thank you so much xxx

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So happy for you Carolina. Enjoy your sunbathing. And many more things. Hope you continue to improve. Have a great weekend. xx

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Thank you so Much xxxxx

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It's so good to hear such a success story. You'll be giving a lot of hope to those waiting for this procedure. Enjoy ! Sheila x

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Thank You Sheila, I do know there are quite a few Friends on here waiting. Good luck to everyone waiting for Valves. Also like me, for a Double Lung Transplant. xxxx

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That's great ,I am so happy for you 🎶

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Thank you so much Susan. XXX

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I'm delighted to read such a positive post. Enjoy every single breath easier day xx

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Thank you so much casper99, Keeping Positive is the only way...XXXXXX

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hi hacienda i have had 5 valves put in one of my lungs, i thank god every day its amazingas copd is not the only health problem, those wonderful doctors at southampton hospital i cannot thank them enough they have changed my life , I was really depressed so it is great my husband and i have been together for 50 years and we have gone through so much to gether and if it was not for the really wonderful NHS i do not think either of us would be around so cheers to the NHS

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Hi Kapre,

What wonderful News to inspire us all. Yes, I agree the wonderful NHS and The Consultants and Nurses. How long ago did you have them ? I have been told they will Last for 2 years, they assessed me to have them as I am waiting Lung Transplant (listed 2 years now ). So, if I become one of the Numbers waiting too long on the List, They can replace the Valves. Wow, you have been with your Hubby 50 Years that is amazing, Congratulations . Please , carry on living a wonderful Life and please keep us all updated to inspire all our friends on here waiting for Valves.. Bless you. Love n hugs to you Both. xxxxxxx Carolina xxxx

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I'm so happy for you, wishing you everything you wish for yourself. God Bless you. ✋️😉xx

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Hi Hun, Thank you so Much xxxxx

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I'm so Happy for you Hacienda. It must feel like all your Birthday's have come at once. long may it last for you. xxx

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Thank You Harry, Yes making the most of them. xxx

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Glad you do xxx

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Hola Fran, Trying to catch up on everyone's Posts, just read yours with Brave Anne. So your not home Yet. It will be Difficult Leaving your Mama, and she will miss you immensely. I do hope your not suffering in this Heat. Tomorrow starts a new week, so lets hope everyone is feeling better and the Heat cools down a bit. me voy por un Tassa de Te.

Abrazos Fran, Muy Grande y Besitos. xxxx

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Me alegro muchisimo Carolina, que te sientes mejor. You have cheered me up no end 😊. Thanks for posting such a positive post and I'm so pleased things are looking up for you 💕💗

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Gracias mi Amor, You sound Cheerful Anne, hope your Feeling Better Carino, Yes, apart from the Heat today, I am doing very well. I go and see my Consultant On Wednesday, X Ray, Bloods, Lung Function. All Positive I'm sure. Lots to plan ahead. Abrazos y Besos a ti y to Hijas. xxxxxx

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Great to hear they are working so well. 🌸

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Thank you so much Hun. xxxxx

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That's wonderful - so happy for you xx

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Thank you Dedalus. XXX

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Great hear of the improvement

Be well

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Thank you offcut xxxx

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Fantastic news Hacienda, am so very pleased to hear this good news. Enjoy every moment xxx

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Thank you Hun xxxxx

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Im made up for you , congratulations 😁

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Thanks Hun. XXX

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Hi Dave, jus looked at your Profile. Have you been assessed yet for the Transplant List? forgive me if I've missed any news. Good Luck, I'm on the List for QE Birmingham. xxx

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Im beginning to feel like the black sheep of the family its been nearly 3 months now since my consultant wrote to the hospital and still no reply .i see my doc on 27th of this month so i will voice my displeasure at the slow progress of my case .im glad your loving your new " bling"

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Hi Dave, I do Remember it took quite a few Months(3/4) after My Consultant contacted the QE, before I was called to have a 4 day Assessment. I teamed up with another Lady also for transplant, she was Listed straight away,(had her TX 6 weeks after Assessment) whereas I had a Nodule on my Lung so had to wait another 2 months before another scan was done, once the Nodule had proved not to be anything bad, I then had to wait till they had their Surgeon/Doctor meeting to re-assess me. Luckily I was put on the List June 2016, I had the first Assessment February 2016. So, it can take a bit more time, be Patient, I'm sure they will contact you for your Assessment when they have everything Ready. Good News is My Assessment friend is Doing very well with her Lungs, we have always kept in touch. Good Luck, Keep us all updated Dave... Carolina XXX

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Thanks hacienda , your reply makes me feel better i realise with wiating kists as they are these things take time but as you can appreciate we can get impatient, im really happy your improving and feeling more relaxed and confident , stay strong and breath easy x

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What did the doctors install on you

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Hi I'm trying to find information on the valves as much as possible I really would like my boyfriend to be able to get them he cannot do the lung volume reduction surgery because it's to spread throughout his lungs the damage but I do want to check into the valves is it even approved for the United States yet and if so where

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Hi, Jules, I am pretty sure they have just been passed in the USA. Your Boyfriend would have to see His Lung Consultant. Not everyone can have them, depends on the Deterioration and Scarring. His Consultant can advise you Both. Good Luck Hun. xxx

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Thank you it's worth looking into I know he's not a candidate for lung volume reduction surgery because of his sporadically spread through his lungs but hopefully maybe the valves will be different as to whether or not he's eligible

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