Update on bronchiectasis specialist referral

[Lina-61]

Hi All

Got my appointment for Specialist for September spoke to gp nothing we can do NHS I also lost my mum on Friday my anxiety levels are sky high at the moment sinuses all dry saw a gp at the local walkin centre as I was a bit breathless trying to get phelgm up but can't but the gp that I saw said my lungs are all clear but I feel so tired and now down to 5st 10lb I worried sick and to top it off brother decided to go ahead with his holiday in Majorca.

Sorry for ranting about this

Lina

[cofdrop-UK]

Please Lina don’t apologise - you have a lot to deal with. I am so sorry to hear of your dear Mum’s passing. Have you tried contacting the consultant’s secretary yourself?

Wishing you luck with this and strength at this difficult time.

Cx

[Lina-61 in reply to cofdrop-UK]

Yes I did and she said he only does 1 clinic a month and he is on annual leave at the moment but will try again.

Thanks

Lina

[Ergendl]

So sorry to hear of your situation when you've only just lost your Mum, Lina. You are in my thoughts and prayers.

[Lina-61 in reply to Ergendl]

Thank you Ergendi❤

[mskpjb]

Lina I am so sorry to hear you've lost your Mum and also very sorry that you are feeling so ill. Has your GP precribed Carbocysteine ( Mucodyne ) to help you get the phlegm moving ? If he hasn't maybe you could ask for it. Another idea is to ring your Specialist's secretary - the hospital switchboard will put you through - and ask to be considered if there are any cancellations. Sheila x

[Dedalus]

So sorry for your loss Lina. No wonder you're feeling anxious. There is some good advice above from others. Hope you get things sorted and you feel better soon x

[Lina-61]

Thanks Dedalus been to docs and checked out by nurse practioner heart blood pressure and lungs ok just got to try a supply a pot of phelgm since I have had a antibiotics for chest infection

Lina

[lKeith]

Lina-61

Hi, So sorry to hear of your current demise. There are treatments out there for your disease but probably not readily available on NHS. There are lung transplants, lung reduction, lung valves & coils and stem cell treatments. Research any of these to find out if any of these procedures are carried out by an HNS hospital. The valves & coils are available at a number of UK hospitals, the UK representatives can give you names of participating hospitals UK wide. The stem cell treatments are abroad mainly in USA, Germany, Thailand, India & Ukraine. be careful with these sites as they will cost serious money & there is no guarantee of success. Start with the second opinion & work from there. I have been through most of these site but as I have a cancer I cannot be accepted. You may also try "Trial" sites for which you will need a ref letter from your specialist or GP.

Provided you are not a serious wreck like me, you may find something above that might interest you. Keep smiling.

IKeith

[Lina-61]

Thank you IKeith

Lina