IPF questions: Hi, can anyone help with... - British Lung Foun...

British Lung Foundation

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IPF questions


Hi, can anyone help with the following :-

Has anyone experienced bad side affects with pirfenidone,

Really bad fatigue, could not increase medication as it put

me to my bed.

I have just started with ambulatory oxygen and am not sure

when to use it, when I exercise, do I do as much as I can without it,

then use it or just use it whenever I exercise.

I do the breathing exercises to help get rid of mucous but

finish up with pains in my chest and back with all the coughing

is it helping ?

1 Reply

Hi. Have you asked your doctor about this? The person who prescribed it, or the pharmacist who filled your prescriptions should be able to answer your questions. All the best.

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