Hi All, I have only just joined this website. I titled this first message 1000 days as 5 years ago I was diagnosed with IPF and the prognosis was 50% die in three years etc. We have all been through this trauma and I have now reached 2 years past my sell by date.
First many things are in the mind, I have a condition, not an illness. This has helped a lot although I have been on Perfenidone for 3 years (now on 3 tablets a day and not the 9). I am also on ambulatory oxygen but exercise regularly (even if I don't really feel like it).
Second, I am a member of the local Breath Easy Group which gives great support and helps you realize there are many worse off than you (COPD).
Thats all for now, I don't want to bore you with detail but will be in touch again.