Hi all, some of you may remember my post from several months ago.
I have had various tests and scans since Dec 2017 - all my bloods are normal, nothing of significance was picked up from sputum samples. My lung function tests are around 70-80%, so not too bad considering I have mild asthma and one third of my right lung is not working. Based on the CT scans, I have been diagnosed with a rare cystic malformation - Congenital Cystic Adenomatoid malformation (CCAM), also known as congenital pulmonary airway malformation (CPAM).
I have been advised is that this is a very rare malformation since birth, which must have been relatively mild over the years - and it must have recently got more badly infected a few months ago - and thus hasn't healed properly which leaves me vulnerable to regular low grade chest infections.
Therefore, the plan is to remove the lower lobe in my right lung (as this is the only part of my lung affected), via VATS (potentially switch to open surgery if there are any complications during surgery). I have surgery scheduled for 12th June 2018 at the Royal Brompton Hospital in London.
I have never had an operation before, therefore am nervous and am only 32 years old. The surgeon and team have been supportive, explaining surgery is relatively low risk and should resolve the problem. I would be extremely grateful if anyone who has had a Lung Lobectomy or had a similar congenital lung problem identified during adulthood - could help with some advice. What to expect? Tips for recovery? Any further questions I should ask? etc.
Many thanks for your help and support.