Taking immune suppressants

[Regina77]

Hello everyone it's been a while since I posted anything. I've recently have been prescibe mycophenalate and I noticed that I've been feeling jittert, forget full at times and my cough has increased so I'm hopeing I'm not getting worse I've been on oxygen for three years now due to my lungs hemmoraging any tips on helping with the coughing, and what other treatment that can help with keeping the compliment stable. I don't want my Lupus to get out of hand and now my legs are swollen.

[Caspiana]

Hello Regina77 . 👋

I'm sorry you are having such a hard time. I too have an autoimmune disease, Rheumatoid Arthritis and am on the immune depressant drug Remicade (Infliximab). I have never taken Mycophanalate so, I can't speak from experience. I would recommend informing and getting advice from your doctor. All these medications we take have side effects, some more serious than others. When in doubt, I usually consult with my doctor and nowadays when my doctor says, "There are side effects but not much" , I take what is said with a pinch of salt. 😑

Don't suffer silently, ask your doctor or your pharmacist. I really hope you feel better very soon.

Sending warm wishes.

Cas xx 🌞🐞🌸

[Hidden]

Dear Regina

I would phone the BLF helpline and/or your lupus association to find out more but if your legs are swelling and you are feeling uncomfortable I would go back to your GP or specialist unit.

You take good care of yourself x

Fran

[Regina77 in reply to Hidden]

Thank you

[Regina77 in reply to Hidden]

What is BLF

[Hidden in reply to Regina77]

British Lung Foundation 😉

[Hidden in reply to Hidden]

Link for phone number: blf.org.uk/support-for-you/...

[mrsmummy in reply to Hidden]

Unfortunately, the Helpline is only available to residents of the UK.

[Ergendl]

Lovely to hear from you again, Regina, but so sorry to hear how you're getting on. You are in my thoughts and prayers.

[Regina77 in reply to Ergendl]

Thank you dear

[Regina77]

Thank you