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COPD and lung cancer

jimmy54 profile image
15 Replies

hello guys I'm new to this group

I have had COPD for several years and used different types of inhaler including Spiriva,Seretide 100 and salbutamol. I don't know if any of them actually work cause I don't feel any different after using them. I suppose it don't help that I also have lung cancer (2nd time around) , but was told by my oncologist that my breathing will only get worse due to COPD

any tips would be helpful

cheers Jimmy

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jimmy54
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15 Replies

Only thing i can think of is original uncarbonated lucozade.

All to do with oxygen demand and recovery THaTs why athlets use it SO not panting.

Guess anything is worth a try but is rich in sugers AND bacteria love sugers BUT dieases are all about trade off's i have found.

Sorry to read about cancer hope you recover again like did first time

Caspiana profile image
Caspiana

Hello Jimmy.

I'm sorry to hear about your diagnosis. Once would be awful enough, it's just so horrible that you have to go through it again. I'm sorry I can't help you with your question, but I just wanted to say welcome and I hope things work out for you.

Sending warm wishes,

Cas xx 🍀

Damon1864 profile image
Damon1864Volunteer

Hi , so sorry to hear about your cancer it's bad enough once, but two times must be awful. I was on different inhalers but now only take Trimble, I still have my salbutamol, but all the others have gone. It works well for me, it might be worth looking into . Ask your GP or Specialist about it. Take care and good luck. Please let us know how you get on. Love Bernadette 😳 xx

jimmy54 profile image
jimmy54 in reply to Damon1864

thank you Damon1864

sassy59 profile image
sassy59

Wishing you strength jimmy in all you have to go through and hope you find an inhaler that works better for you. Take care xxxxx

bernardette profile image
bernardette

Hi Jimmy. I have had COPD for several years and, after radical radio and chemo, have been in remission with lung cancer for nearly 3 years. Last 6 months have used oxygen for going out and sometimes at home too. Like you, I'm not sure of any value to inhalers. The thing that helps the most (altho' I don't like it) is a BiPAPP machine which I use for 8 hours every night plus oxygen. Have you been offered this?

katieoxo60 profile image
katieoxo60

Welcome to the site, not sure I can advise other than on COPD. Home exercises can often help breathing, maybe you need a larger dose of seretide. I take seretide 500, there are different doses yours is one of the smallest, lung cancer wont help the breathing as it is damaging your lung capacity as well. Hope your treatment for the cancer is successful, it is not easy to find best treatment when you have more than one illness effecting the same function, in your case your lungs.I wish you every best wish from a fellow COPD sufferer.

shadow4me profile image
shadow4me

With COPD we dont get the full benefit off inhalers has its not reversible like Asthma sadly i think many off us feel the same way we puff alll these inhalers for not much relief although i would ask for them to up or change your Seretide to another to try ,Very sorry you are also having to battle cancer with this horrid disease and that you make a speedy recovery xx

2greys profile image
2greys

Hi Jimmy, what a blow. to be diagnosed with a second bout of cancer. Unfortunately your Oncologist is correct, COPD is a progressive disease, it can only get worse. If your inhalers do not seem to help you then it is time you had a medicine review, they will never make your breathing normal again though, you will still get short of breath.

What you can do is slow down the progression, down to that of the normal aging rate, which can be done simply by leading a healthy lifestyle. No smoking ( inc. 2nd hand smoke or any other smoke), eating a balanced diet and maintaining a healthy BMI, exercising, hygiene - wash your hands frequently and keep them away from your face. Also stay away from others that have respiratory infections.

I am just recovering, this week, from SABR/SBRT radiotherapy for lung cancer and I also have COPD, so I do empathise with you 100%. My inhalers still work in exactly the same manner for me, but since developing cancer, my lung function has declined somewhat but I am full of hope that it will recover as the tumour shrinks, from taking up/blocking breathing space.

jimmy54 profile image
jimmy54 in reply to 2greys

in 2012 I had an upper left lobectomy and the hospital took a few lymph nodes and said they were clear so didn't have chemo or radiotherapy at that time .. this time round the tumour is wrapped round my Aorta so they cant operate unfortunately

CornishBrian profile image
CornishBrian

The effects of COPD are a little like the aging process....no, it's the same. You wouldn't expect your body to be able to run as far or as fast as you did when you were 20. Age takes its toll probably more than COPD. You can help to control COPD and you will be surprised at the outcome....even astounded . The best results are through exercise, pushing through barriers and learning breathing control. Looks like it's a job for Pulmanory Rehab...or PR. Learn how to exercise safely, eat well, how to recognise your bodies needs and make a few good friends. Believe me, please. I know, your probably thinking, here am I struggling for breath and there is some clown on here that's says I need to exercise. That was my reaction but the group I went to, one of the group was an 82 year old lady who just had her left lower jaw removed and been through cancer treatment, she was 6 stone went through and carrying an oxygen bottle in a haversack....mind you, it might have been to stop her blowing away. Anyway, she went for it, giving 120% and so I thought " you ain't going to let her see you are a wimp, are you?" She was my inspiration and we remained friends until she passed away last year. Give it a try but don't wait until you get onto PR, go to BLF site and get their exercise leaflets and breathing control leaflets....I promise you,you won't prove me wrong.

Gwen46 profile image
Gwen46

I recently had my inhaler changed to ANORO 55/22. Huge container compared to the normalbut I don't feel tight chested now even though the pollen is all around.

Lmax profile image
Lmax

I too have had COPD for several years and just recently been diagnosed with lung cancer which unfortunately is not curable. I have had one dose of palliative radiotherapy to hopefully shrink the tumour and prevent it’s spread to my spine. I also use Spiriva, Salbutamol but my Seretide inhaler is a 250 dose. Perhaps your doctor could increase the dosage of your Seretide inhaler which might help a little. Since having the cancer diagnosis, and in my case palliative radiotherapy, my lung function has dropped significantly and even using oxygen 24/7 hasn’t really helped with the breathlessness that much. I was prescribed liquid morphine to help with any pain I get and the cancer nurse told me to take 1ml of this as it can help with breathlessness. I have done this on a couple of occasions when the breathlessness was particularly bad and it did work - mind you I felt as high as a kite for a little while!!

Having read other replies here, I agree that asking your doctor to update your medication would be a good idea as is pulmonary rehab (if you are well enough to do it). Best of luck with whatever you choose to do.

Susan1200 profile image
Susan1200

I am so sorry to read you have this awful disease,I hope you recover the second time around,I wish you all the best to a brighter future, welcome to our wonderful group,we are here for you and will try to help you .

Take care Jimmy 54 .

carolg1 profile image
carolg1

What type of lung cancer do you have jimmy x

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