So many flare ups: Hi all just having a... - British Lung Foun...

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So many flare ups

Hi all just having a moan since January this is my fourth flare up been 3 years since my last big one ever time I come off the antibiotic and steroids it comes right back again is this normal getting fed up now and docs don't seem interested straight in and out couldn't have my tests done because I was on antibiotics n steroids the nurse said has any body else been in same situation need to get back to work now

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Hi Southp, you need to be tested to see what’s going on. Don’t take no for an answer. Wishing you well. Xxxx

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Hi sassy I know I do ,feel like I'm on a conveyor belt at docs in 10 mins out NEXT please i mean I know there busy but come on, I need to see the same person instead of explains ever time I go in my history which they should have in front of them anyway sorry bout moaning started on my backup again last night cos couldn't breath feel a bit better this morn

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Hello Southup

Several suggestions, go to your GP to have a check up because repeating the same antibiotics doesn’t always clear your infections you need some blood/sputum tests to see what is going on.

2. A treatment review would see if your preventer is still effective, often it is down to our inhalers and inhaling techniques

3. Get a referral to talk it over with a respiratory specialist if you haven’t been to hospital for a while.

Good luck x

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Yea gonna do that ,there's no specialist at our surgery and seen different doc every time need to see someone who specialising in it thanks happylondon

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When things got complicated I asked for a referral to the local respiratory unit at the nearest hospital, GP can’t say no, you are entitled.

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Yea thanks gonna do that how long do you usually have to wait is it a long waiting list

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Well you have to say politely asap but laying it thick😉.. like I have had a really rough time lately, I really would like a referral to the respiratory unit to investigate what is going on because I am absolutely worn out.

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You can add I must work you know, I can’t keep going on like this. That usually does it because they like people to go back to work, it’s good for their stats and bonuses..

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a couple of years ago i was the same as you, it was one flare up after another, my doc put me on Azithromycin ,one tablet 3 times a week i have been pretty ok since then i still get s o b, but no bad flare ups.

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Hi whit what's Azithromycin

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It’s an antibiotic. My husband Pete takes it 3 times a week too and does well on it. Xxx

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it is tablet that combines anti inflammatory and anti biotic together , i take one monday, one wednesday ,and one on friday.

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I'm gonna mention this to my doc thanks guys

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I take roxithromycin, which is similar. My pulmonary nurse put me on it about 12 months ago. She said it acts as a barrier when I go out and guards against any nasties that try to attack my system. Seems to work OK.

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Hi. Yea. You are on. 625 mg. augumented. Antibiotics also. How did you go so long since last. Infection well done. Sorry though to hear. That. Things not good it's a bad enough illness. On its own and when infected. Are you like me and never ever go in to hos. Only went 1 in 11 yrs and that was. Critical endocarditis but that was though injection abuse. Opiates Clear now. What's changed for you. As this as to be got. A very firm. Handle on this situation As. They can really mess things up I got one about. 3 months age 1 st one in 2 half yrs. I nearly one 20 months ago but. I. CAUGHT it. Lots fluid steroids antibiotics. Nebs fresh. Lived next to window. Day and nite butof night drawn curtains and a gap. But when. The day. light. Cos. Nite time air. Very bad for COPD. Look I could go on for ever and it takes me a very long time to do little and I do keep busy. Resting ok. But only. I have pushed to the MAX. And some. Never to much or never to little. When rest. Catching breath remember remember. Belt belly belly. Breathing. Relax relax. Let go. Clear the mind thing of a water fall. Waves crashing. A shooting star. Flying along its journey with until bang. Flash. Life. Is a billion to one and. Live live live. Never say never. Above and beyoung. We will get there one day. Care. &. Love. Pj

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Thanks tricity

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Hi,suffered the same just before and after xmas,after getting lots of good advice from all these lovely people on here I asked my GP about a different antibiotic,I had been on amoxycillin,he changed mine to a slightly stronger one,can't remember the name and hey Preston been clear for over 2 months now despite the beast from the east etc,all down to these good people on here,thanks folks!!!

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Hi jollj I was on amoxicillin that didn't work then got it changed to something beginning with de can't Remember they work but as soon as I stop taking them comes back I'm gonna take happy Londonderry advice and demand to see respiratory nurse at hospital

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