I may be prescribed mycophenolate soon. The side effects sound awful. I'd like to know the experience you've had with it. The respiratory doctor seemed to think I should be getting some treatment for my lungs. Personally, I feel that with RA related pulmonary fibrosis and severe pulmonary hypertension, there isn't much point at this stage.
I'd also like to know how I'm going to die with PH. Will there be any warning, or am I going to just drop dead? I'm sorry to seem morbid but I would just like to know.