I was recently referred to hospital for respiratory physio, but I was a little disappointed, as the therapist just had me doing extensive walking followed by "marching" on the spot. No hints on how I should breath etc. She was very interested in how long I could manage to do things, and if I asked to stop she said "no keep going". I found it all very hard, as I get so short of breath, and I had no oxygen on hand, although I had taken my portable unit with me. In the end my Husband, who accompanied me (as I use a wheelchair) said to her "I think she has had enough, especially the "marching". She wasn't happy but I did sit down as I was beginning to feel light headed and faint. I should mention I have had two hip operations, one in 2005 and one July last year, also I have Osteoporosis and Rheumatoid Arthritis, which I have had for over 40 years. I should also mention at this point I am also partially sighted following a cornea implant. This doesn't help from a balance point of view. I am 76 years old, and in my younger days was a dancer, so you can imagine, being immobile is quite a hard thing for me to come to terms with. I just wanted your advice as to the way I was pushed, is this reasonable and common practice for patients with IPF. I am trying really hard to get my mobility better, and walk around our bungalow using a 4 wheel walker or sometimes a stick.
I do have a Macmillan nurse visit me on a monthly basis, and I frequently have a Physiotherapist too, she helps me with basic exercises and my walking.
I would really appreciate your opinion and advice.
Sylvia Hanington (nansyl)