I give up.

[Boudica1]

I saw a GP today, not my normal one to talk about Dapsone and resent diagnosis of U.V and the effects of Dapsone and COPD. Seems as thought the skin clinic have told me I have U.V but on my notes said Urticaria. So on that count alone what the heck is going on and why have I been on a double max dose of anti-histo's for 2yrs. Plus if they got that diagnosis wrong why all the blood tests and biopsies. What am I a lab rat so students have something to look at an learn from. Plus if they mucked up that what about the Asthma and COPD, both just treated at the GPs. Have they muck up with that too just for an easy answer. Now unsure of anything they say I have and will now stop all meds as sick of this stupid merry-go-round of drugs, bloods and biopsies.

[Caspiana]

Hello Boudica1 .

I'm sorry you're having a tough time of it. I must admit to being ignorant of your condition urticarial vasculitis. I just assumed urticaria which you saw on your notes, and urticarial vasculitis are in essence the same thing. Forgive me if I am wrong.

Do you have any underlying conditions that caused it? I know it is quite uncommon and is in some cases, associated with systemic lupus , rheumatoid arthritis and Sjögren’s syndrome. Both of the latter I suffer from.

As for Dapsone, you don't mention what the GP advised about taking it. I know it is not unusual for patients to have to undergo treatment for several years especially in the more severe cases. I understand your apprehension at taking a drug that could perhaps effect your other conditions. I can only urge you to talk with your medical team to see what would help you.

I know what you mean about feeling like a "lab rat". Sometimes, it certainly feels that way doesn't it? However, the doctors cannot play a guessing game. They do need tests and results to find the best course of action.

I would urge you not to give up. If you are unhappy with your current care, do go for a second or even a third opinion. I know it's exasperating. 😖

I hope you have a relaxing weekend. 🌻🐞

Warmest wishes to you.

Cas xx 🍀

[Hidden in reply to Caspiana]

antihistimines are used to treat urtrucla skin rashes I had bad allergy come out the blue from tramadol this week which unfortunately gave me skin rashe which was really painful I cant describe it gave me stabbing pains all over my body for 4 days which I tried some over counter antihistimines which didn't work,in the end I rang the dr and he very kindly returned my call,and prescribed the appropriate antihistimes for a strong opiod painkiller and within 30 mins they worked.so I am very grateful as this particular practise is rushed of its feet.

[Caspiana in reply to Hidden]

Oh my Hidden . That is Just horrible. I've heard of itchy skin rash, but not painful ones. I am so glad the doctor got back to you. I had hives twice in my life. It was horrendous enough with the itch. I cannot imagine what it's like painful. xx 🌹

[Hidden in reply to Caspiana]

thx cas that's very kind of you.i cant understand why its happened.a dr who is now retired told me yrs ago tramadol in his opinion is a horrible drug which I don't like.he then said people come in and ask for it then they returnand beg me 4 it .he said I don't recommend it helen. its a horrible drug.and fair play he was right in the uk-there is now a problem as it is commonly abused by some people.everything he said about tramadol 10yrs ago was spot on.

I also admit its helped me in the past with arthritis pain in knee.and I know a few members on here use it.but for me I would never take that pill ever again.unfortunatly had bad reaction but most people use it responsibly.also would like 2 say its a horrible thing when somebody develops any addiction problem-and there but for the grace of god go I.

[Hidden in reply to Hidden]

cas ive just tried to message you everytime I try to send no match comes on the screen.the same thing happened yesterday.i did ask sassy do you think its ok to message cas.and she told me yes give cas a message..i did write to you as both you and sassy have supported me in the past and gave me support.and I think people should know both you and Carole have given me valuble good practical kind advice and I did appreciate that.

[Caspiana in reply to Hidden]

Hello Helen.

I'm not sure why you couldn't message me, but I want to say, there is absolutely no need to thank me. Support is a mutual thing and you have been very kind to me and Chom 🐕 too. So, please don't worry. Thank you. xx 😀🐞💓

[Hidden in reply to Hidden]

thx cas xx you have been very kind and supportive to myself in the past.in private messaging both you and Carole have.just relieved you now know I did try to message you2x and wether its me or aproblem with the system.i realise you are optimist and because of my anxiety problem I come across a pessimist. its fault in my personality.x

[Caspiana in reply to Hidden]

No worries Helen. *HUG* 💓

[zorro1]

Hello Boudica, Confusing and frustrating from your GP. The Vasculitis UK website has a page that deals with Utricarial Vasculitis, which mentions the various types, their treatments/side effects and also has information about the association of COPD with the condition. It may be worth taking a look and making contact with that organisation for some support. All the best. vasculitis.org.uk/about-vas...

[Dmactds]

(..I'm perplexed as to why they would be prescribing a med for leprosy and other skin disorders for someone with a COPD problem...)

webmd.com/drugs/2/drug-6744...

"...This medication is used to treat a certain type of skin disorder (dermatitis herpetiformis). It is also used with other drugs to treat Hansen's disease. Dapsone belongs to a class of drugs known as sulfones. It works by decreasing swelling (inflammation) and stopping the growth of bacteria.

This medication will not work for viral infections (e.g., common cold, flu). Unnecessary use or misuse of any antibiotic can lead to its decreased effectiveness.

How to use Dapsone

Take this medication by mouth with or without food, usually once daily or as directed by your doctor.

Medications for heartburn/reducing stomach acid (e.g., large amounts of antacids, ranitidine, famotidine), or didanosine may prevent full absorption of dapsone into your bloodstream, possibly reducing its effectiveness. Therefore, separate your dose of dapsone from your doses of any of these products by at least 2 hours. Ask your doctor or pharmacist for more details.

If you are taking dapsone for a skin disorder, your doctor may start you on a low dose of dapsone and gradually adjust your dose to control your disease. If you are taking this medication to treat Hansen's disease or to prevent infections due to HIV, the drug is usually taken for years or for life.

Dosage is based on your medical condition and response to treatment. In children, the dosage is also based on age and weight.

For the best effect, take this antibiotic at evenly spaced times. To help you remember, take this medication at the same time(s) every day.

Tell your doctor if your condition worsens.."

[Hidden]

a very detailed reply.nice one.