What needs to change?: Hi guys, You may... - Lung Conditions C...

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What needs to change?

BethanyBateman profile image
3 Replies

Hi guys,

You may have seen my post last month about the Taskforce for Lung Health. If not, it’s a group of 25 organisations, representing people with lung conditions, healthcare professionals, lung charities and professional associations.

We’re working together to create a 5-year plan. It’ll suggest changes to the health service and government policies that will improve life for people with lung conditions. Hopefully, it’ll also help stop people getting breathing problems in the future.

And we’d like your help.

If you have a lung condition, or if you have a family member with one, then we’d like to hear about your experiences of

•Being diagnosed

•The treatment you (or your family member) has had. Or not had…

•The support you or your family member has been given, to plan for the end of life

•The things you think might help future generations

You might not have experienced all of these things yet, but anything you can tell us is useful.

To share your experiences with the Taskforce, please go to blf.org.uk/taskforce/eviden...

You have until the 27th of April. If you’ve already filled it in - thank you. And if you haven’t done it yet – thank you in advance!

Bethany

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BethanyBateman profile image
BethanyBateman
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3 Replies
cofdrop-UK profile image
cofdrop-UK

Hi Bethany

May I ask who makes up the taskforce and if the data collected is anonymised? Thanks.

C

BethanyBateman profile image
BethanyBateman in reply to cofdrop-UK

Hi Cofdrop! It's up to you whether you be anonymous or not. When we take the final recommendations to parliament, it will be helpful if we have case studies to illustrate why we're calling for those changes. Because of that, we ask if we can share your story but, if you say no, that's fine.

Here is a list of Taskforce members - blf.org.uk/taskforce/about/... (Sorry. I'm being lazy and not typing it out, but you'll get better information there!)

cofdrop-UK profile image
cofdrop-UK in reply to BethanyBateman

Thank you Bethany.

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