Sorry if I take another break.
Such is life..I coughed too much, burst a cyst and coughed up blood. It has happened before, one of the downfalls of LAM, it burns like mad but there’s not much you can do about it so I am in bed with chicken soup for now.
Sweet Aria sends her love too!
Fran xx
Sounds very painful Fran. You're getting your fair share of problems just now. The chicken soup will help a bit. I don't know anything about LAM but it sounds very complicated. Have a restful afternoon. Lilian xxxxx
I remember looking up your condition way back, it’s so rare it’s not even a Zebra, or at the very least a Zebra crossed with a Unicorn...
🦓🦄
😂wish it was a white elephant..
Hi I read an old reply you had written to someone and called rare disease zebra and I too have lam do I qualify as a zebra with a splash of unicorn xxx much love mel xx
Doctors in training are told “if you hear the sound of hooves think horses not zebras.” i.e. elimnate the common conditions before flying off into flights of fancy. Doctors are reluctant to consider rare diseases because they don’t want to look like naive junior doctors jumping up and down, convinced that they found a rare disease. This forum is brilliant for those with rare diseases because it puts you in contact with others. There are about half a dozen here with Obliterative Bronchiolitis, I would have no chance of meeting them elsewhere. How many LAMers are there on the forum?
Myself ,Fran and I think 1 other lady popped up once ha ...so few in numbers but big in heart and mind xxxnice to speak to you xxx
All the best Fran! Sorry to hear you are poorly and hope you soon feel better but in the meantime take care and rest.
Oh no I have not exerienced that yet Fran but would really panic and feared the worse if it did so at least I know it is a cyst bursting if it does but that's not good for poor you ... you have certainly been through it this past 2 weeks ...how many times have you had anything lam related happen regarding lung collapse or cysts bursting? I hope your all bandaged up and fit to enjoy your lovely country in spring as bet it's very beautiful and can't wait for your pics you will surely share xxx Get well quickly my friend xx😉💕
Hi my LAM Sis 🧚♀️
Can’t count..when I have a chest infection with a bad cough..I’m older than you, must be a wrinkled cyst 😃 no bandages no, it’s inside..it just stings, paracetamol I think for now..laying still and trying not to cough again!
Did you phone in??how are you?
Fran xx
Ha ha it was a figure of speech regarding the bandages x yes it's official my bite (unknown culprit) still to be identified and caught has become a little infected I'm currently at home with more AB's with my knee on top of a cushion .heartrate still very fast but just staying In bed ... I try stay away from hosp as that's the worse place for me ... anyway you take care xx we are zebras splashed with a bit of unicorn and like I told katinka so few in numbers but strong in heart and mind xxx
Thanks for the feedback sweetheart. Take good care of yourself 💖
Hello dear Fran ❤️💜❤️
So sorry to hear that you're struggling still. You've had a lot to cope with lately, and indeed over the past few months!
Wishing you a steady recovery. Stay in your bed, resting, that will help. And you've Aria for cosy company!
I've got my fingers crossed on a brewing chest infection, doing all I can to stave off taking steroids....do so hate the side effects. Hoping you're not being troubled too much with them 🤞 Otherwise, I'll see you for a middle night chat! At least my back more comfortable although still on some of the more minor meds. So I've stopped crying!!! 😫 I do find meds difficult, mood changing and depressing!
Have an improving day, my friend
Lots of love 🌺❤️💜🌸🍇🍒
Penny xx
Oh sorry my dear Penny ✨
of course the sun is shining, it’s Spring, and here we are..it will pass, everything does, we have reached our down we are bound to get better again..
Imagine sitting in your garden with your grandchildren, telling them stories or ManU winning the next game 😊
We’ve got gogglebox on tonight 😂
Baby steps, baby joys..
Love xx
Fran
You’re right, of course, Fran ⭐️
’It will pass!’ was one of the truisms I heard during teacher training....a long time ago. It’s been a long time...!
It’s a lovely ☀️ sunny and mild day here in North Wales. Let’s hope it continues for us all now 😎😎 💜💞xx
So sorry yet another issue to deal with. I truly hope you feel better soon. Sounds like bed is the best place for you. Thinking of you. Hugs
Well it's certainly not 'Silence of the Lams' day,they are out in abundance and they all seem to be poorly,so Scruffy and I are sending them all a big Hannibal like hug to wish them a speedy recovery.................Skis and a cat that gets under your skin.xxx
Thank you hug greatly received ..hope your well skis.. Cuddles to Her Royal Hannibal Scruffineeta xx
Oh no, that sounds painful - I hope it heals quickly, in the meantime you snuggle down with Aria and get some rest😴
Oh dear poor Fran, it's one thing after another for you at the moment isn't it? I do hope you get some rest and start to feel better soon. Lots of love to you xxx
Ouch, get well soon Fran. P
Sorry to hear your unwell again. I have no idea what lam is but it seems pretty unpleasant. Rest up. And it,ll soon be. Time for planting out. 😊🌸🌷🌹
Have Aria share some of that Easter egg and you'll feel better. Do well.
Sorry you've had yet another problem Fran. Hope it's the pastor them and that the rest of your recuperation will go smoothly. Lovely photo of Aria xx
Oh no, you poor thing. Life really is dealing you a raw deal at the moment. Glad you enjoyed your chicken soup. I gues rest is the answer to most things. I’ve just looked up LAM - sounds awful.
Hope you’re feeling better soon.
Hope you feel better soon fran, rest up and enjoy your healing soup x x
Sorry to hear that Fran. Just take it easy for now you need a complete break after all that's been happening. Much love, Sheila xx
Take care sounds like you are over doing it to me, pamper yourself a little.xx
Hello Fran, sorry to hear you've not been well. It must be painful. Chicken soup is my favourite, so get plenty of rest and hope you get well soon. 🤞🌹
Oh no that doesn’t sound good, i hope your cat keeps a good eye on you. I don’t have any cats now but I always had this feeling with my (now sadly departed) feline friends that they had healing powers. ...ps my lovely Max was the spitting image of your Aria xx
Hope you're feeling a bit better now.
Not really..nasty bacteria probably but thank you 😊
steroid withdrawal again!
Back in hospital AGAIN Sat 1t4h August
Just to say thank you everyone.
Big thank you (bottle update)
