I have been feeling poorly since this morning, thought it was the early blood test, my chest infection, the clarithromycin, the after ops..and said to myself I’m going to go home, feet up, green tea and rest!
By 5pm I felt really tired, barely standing, and I thought the GP hasn’t phoned me with the results as he said and so I did, imagine they had been sent to a different doctor, he was waiting..
He has tried to get through to the endocrinologist for guidance without luck and will try again tomorrow.
Anyway my cortisol had still dropped and it was minimal which showed that my adrenal glands insufficiency was critical so I had to take 10mg prednisone straight away, Bea has had to rush to the pharmacy to get some hydrocortisone tablets. They are 10mg capsules, I have to take 3 first thing tomorrow morning instead of the pred and maybe another couple during the day, the GP will let me know.
If I start tummy trouble or fainting Bea has to call the ambulance service. If not I have to live my normal life.
Coping with daily steroids, finding the right dosage etc is difficult but I have followed medical guidance so how did I get to this point, as I said above I must have had too much on my plate.
So poor Bea has been looking after me, checking on the internet, she fed me with avocado, olive oil reduced sugar baked beans, a yoghurt and sugar free liquorice for dessert 😃
It took me ages to eat a few spoonfuls of the mix but I felt so grateful to have such a nice daughter 💕, I certainly didn’t want to disappoint her 😉
I loved to see Aria and the garden with a view, I sat a little outside with her and could feel the sun warming up my legs..
So fingers crossed my dear friends, that being home will make all the difference.
Oh poor Happy Fran,you have been through the wars and not out of the woods yet by the sound of it,rest now and let your lovely Bea fuss over you and Aria head butt you into happiness,though there has been a real bonus from your recent nursing home stay.you have suddenly sprouted a pair of legs,previously never seen.
Dear Fran, I'm so pleased to see you home, relaxing and being looked after. Fingers crossed things will start to improve for you...we're all wishing you well. Lots of love for now.. make sure you get some rest😊😘😪 xxx
Glad you are back Fran. You're dealing with a lot I hope you start feeing better soon. What a lovely daughter you have. Have a good night. Lilian xxxxx
Oh my Fran fingers crossed you will soon be back to your normal happy self xxx you look well on the pic and very refreshed to be honest... give me some of whatever you have been having 😉I am not too good today sadly very fast heartrate at rest and to make matters worse a huge bite on my knee causing it to swell twice the size plus very very red and now noticed a white hard water blister looking lump on it ! it is also very itchy just like a heat lump . .I'm quite concerned now as my breathing at this point is getting tighter as I.m typing this xxx right gonna ring for advice I think xxxglad to have u back my lam sis xxx sorry but it has been a long day xx xx
in reply to
Oh my LAM sis..💕
I will get better once I am home I am sure.
Worried about you sweetheart..don’t like that swelling on your knee, go and get it seen to promptly. Is it a reaction to some med?? It is bound to affect your general health. Send me a comment once you phone in if you have time.
I am watching some Agatha Christie on BBC iplayer to try to get some sleep as I have received a mail at 0.25 am 😃 from the endocrinologist giving me opposite instructions than the GP. Honestly I don’t know where I am coming or going but I’ll follow the specialist’s advice.
Wrong choice Agatha Christie too exciting! Should have put something boring 😃
So even if I drop off again I’ll keep an eye on your answer by the morning.
Take care lovey, thinking of you as always. 🤞🧚♀️💓
Welcome home Fran, although it sounds like you still have a few problems to surmount. Know you will do it with help from Bea no doubt. Fingers crossed for you bye for now take care xx
Oh poor you - and still it goes on. I hope you’re feeling a bit better this morning. Bea is a star.
I agree with you completely with getting your steroids right. I’m only a year into this adrenal insufficiency thingy and I’ve been taken completely by surprise a couple of times about how quickly your body slows down (can’t think of any other way to describe it!) I’m on the right steroid dose now for a good day, but as soon as I get any sort of infection the adrenal insufficiency kicks in.
It’s quite a grey day here today, not like the beautiful Spring sunshine yesterday. I hope it’s warm enough for you to sit in the sun for a while.
Oh dear Fran. I hope you will feel better day by day. You are lucky to have Bea taking care if you and I know you hate feeling so vulnerable. Be patient and enjoy the little pleasures such as the Sun warming you. Take care xx
Poor you, you really have been through the mill. At least you’re home now and hopefully on the up. Take some time, rest, do what the docs tell you let people take care of you while you get better. Thinking of you. X
As Dorothy said in The Wizard of Oz, there's no place like home. Take things very easy till you feel back to normal. Thank goodness you've got such a help in Bea. Love, Sheila x
Good news you are home even if you are not yet fully recovered. I am glad you are being well cared for. All we need now is some nice weather so you can sit the other side of the window. Take care x
Thank you for your kind message 😊Thought about it and then I understood the GP meant well, he did phone me this morning to see how I was, he had read the specialist ‘s email and understood the matter. That’s why we have specialists I suppose, they know their stuff. Just took a little while for everybody to get in touch. I had already increased the pred last night as the GP had suggested, didn’t sleep a wink. Luckily I hadn’t started on the hydrocortisone which was supposed to be from this morning..so all well on that score xx
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Thanks to you all
Made it home ok thanks all. Another day another saga. 
Confused messages from the Dr
Just to say thank you everyone.
What A Birthday I Had !
