Up Date

[asfaan_abs]

Visited hubby in hospital consultant now saying they are not treating him for infection its his lungs progressed advice to refer him to hospice any advise , do you all think he will be OK and come home. has anyone had any experience of this respiratory co2 level at 15 and come down .

[knitter]

Just to say I am thinking of you, but i am sorry I have no experience of CO 2 levels.

Hopefully someone else who knows more can help later.

[asfaan_abs in reply to knitter]

thank you for your support

[Lmax]

I unknowingly had higher levels of CO2 for some time but since being provided with cpap for use overnight (and slightly longer if possible) my levels have dropped to somewhere near normal. I'm very careful not to use too high a dose of oxygen for any length of time as this can affect the amount of CO 2 that is expelled from my lungs. If your levels get too high you can suffer from headaches, confusion, unsteadiness, extreme tiredness etc.and it can be quite dangerous. Using a cpap machine for a few nights can be uncomfortable but you get used to going to sleep wearing the mask, and it works. Hope this is of some use.

[asfaan_abs in reply to Lmax]

Hello Lmax

when you say you was on higher level of co2, how high was you on he is in hospital with 15 ltr per mints and its not coming down what illness are you suffering from my husband is suffering from IPF and its progressed so much , he is on last stage of his illness

i wait for your reply

[Lmax in reply to asfaan_abs]

I was diagnosed with bronchiectasis over 20 years ago and after a particularly severe infection was in hospital, after week's stay, took a turn for worse, taken into intensive care, given 50/50 chance of survival (so I'm told), when I came round 3 days later, I was wearing a cpap mask which I had to wear for another couple of days. To cut a long story short I survived but lungs very badly damaged as a result. Have since developed other problems, lung cancer being the latest, only receiving palliative care because of lung damage, oxygen now up to 5 ltrs which I know is quite low compared to some people but for me is very high. I have been receiving help and advice from a local hospice who will answer any questions you have over your husband's illness and care. I was worried sick when the word hospice was mentioned but I've found them to be really helpful and caring and it does help to know someone will answer any questions you have. I hope all goes well for you and your husband. Take care.

[Hidden in reply to Lmax]

Lovely reply xxx hope you keep well xxx

[Lmax in reply to Hidden]

Thanks Kemety - went for blood gas tests the other day, oxygen levels lower than usual, very breathless, chest x-ray showed slight infection in base of right lung, now on high dose antibiotic and steroids for 2 weeks - doctor wanting to kill the bugs off before any further damage done. Hey ho another round of visits to hospital, GP, etc...

[Hidden in reply to Lmax]

... Hope things pick up ..I too am on oxygen but my eyes are so blurry and I'm so dizzy alot nowadays xxx it's driving me crazy 😨😩😁.. my nose is so sore at bottom although I have been using a cream to stop the dryness etc .. I can't win with this oxygen ...too little I'm stuck and too much and I'm stuck ... I defo don't want another intensive care 15hours in mask unconscious respiratory failure it was horrendous for my poor family xxx it goes to show how someone's situation can change so very fast xxx

[Lmax in reply to Hidden]

Totally agree - can’t believe how quickly things can change from day to day. I have to use the niv machine every night which although not particularly comfortable has helped in that it forces the air into my lungs and takes the effort out of breathing. I too get a dry nose occasionally but not too bad - the dry mouth in the morning is worse. My late husband was brilliant in that he was always there ready with a drink for me - since he passed away almost 2 years ago, everything is now down to me to do - very hard. Xx

[Hidden in reply to Lmax]

I know how you feel regarding the loss of your husband and having to fend for yourself as although my partner is still here his frame of mind is not too good and he is not the person he once was it's heartbreakin .... I also have to do alot of things which can be a huge struggle .The niv saved my life whilst in hospital and they where talking of sending me home with one but I eventually got where I was breathing for myself and all my sats got sorted plus with cysts on both lungs they felt it could be detrimental to my health to use niv for prolonged periods of time...take care xx

[asfaan_abs in reply to Hidden]

Hi kemety

i still have him but not looking good its his lung fibrosis has progressed and not breathing a well and on 15 ltr oxygen in hospital just need your prayers that his sats get sorted at least he can come home.

[Hidden in reply to asfaan_abs]

Oh dear I'm sorry....yes lots of prayers and love coming your way xxxplease get in touch if you need some support ....lots of us are here for you xxx

[asfaan_abs in reply to Hidden]

its ok its genuine mistake no hard feeling i know that you all are with me take care and have a nice week end

[Caspiana]

Hello asfaan_abs .

I'm sorry you are both in this difficult situation. I cannot really make any helpful points about your husband's condition as I really don't know. But I will say hospice is there to help people manage complicated illness and does not always mean the worst possible outcome.

I would also encourage you to ask the consultant those questions that are in the back of your mind. I know how uncomfortable it is to ask these questions, but in my experience, it helped me to make decisions and gain understanding as to how to proceed. I hope I am making sense, if not, please just disregard this as my silly ramblings.

I am thinking of you both and wishing 🌟 all the best.

Sending love and light.

Cas xx 🌹

[asfaan_abs in reply to Caspiana]

Thank you cas for your comment i know they are there to help also my husband condition is that he suffers from IPF and is on last stage

[Caspiana in reply to asfaan_abs]

*Hug* 🙋💜

[Annie31]

There are many reasons for hospice care these days. Hospitals do not seem to be able to offer the level of care needed in some cases and need to offload on to other facilities. That does not necessarily mean the worst scenario in all cases. You will probably find the level of care your husband needs at the moment will far exceed he would get in hospital. I wish you all the best xx

[Hidden]

Hi yes your husbands oxygen level is low not sure what his reading is so they have put his oxygen up to 15litres per min.. think you have mentioned he was on 4 lpm at home ... his co2 levels are where they take blood from his wrist in the artery and take a reading... in turn giving you a reading for his abg(arterial blood gases).depending on the result of that they can then put him on a machine called niv non invasive ventilation that's what I was put on as I was unconsious and only doing 5 breaths per min with acute type ll respiratory failure...the mask keeps air flow and basically does the breathing for you ... there is also a cpap..again continuous positive airway pressure there are several but they all can be used in different scenarios and stages of illness but your husband may not need one ... really advise you speak to a nurse if there are not many consultants about as knowing what to look out for helps although I really think your doing fine...xxx I had just wrote you a message to see how things are then I found this from yesterday xxxagain you are in my thoughts and prayers xx

[asfaan_abs in reply to Hidden]

thank you so much

[SquirrelsHolt]

Hello there...having read your post and then the replies,I totally agree that you really do need to speak to the Consultant dealing with Hubby,firstly to give you some answers to very sensitive questions and also to then maybe speak to the hospice using this information. It is so true nowadays that hospice's are being used for their wealth of expertise and knowledge. They can often offer care that our NHS might otherwise take time to offer. I hope you keep in contact and the BLF helpline maybe another option regarding some of the questions you may have?

Take care x

[tamariki]

Pursed lip breathing helps get rid of C02.