Hello everyone. I hope to pick up a few ideas/tips here and maybe sometimes I may even be able to give some advice too, having had COPD since 2005
New (Old) boy!: Hello everyone. I hope... - British Lung Foun...
Well you seem to have started off on the right foot by facing up to the fact that you have something wrong, many (too many) people ignore the problems and just hope things will go away and get better on their own, they don't !
You do not say how bad or mild etc. your condition is, and I do not know very much about emphysema, in fact the only thing I think I am right in saying is that everyone who has ever smoked has emphysema.
Please try not to get yourself too worked up about your condition until you have been given all the facts etc by a specialist doctor.
You have done the main thing, by giving up smoking. I was told that if I did not stop (back in 2005) I would be walking about with an oxygen tank, I gave up there and then! I still ended up with having a oxygen bottle, but not until last year. However I also worked in the film industry in the wood mill which of course is not a great place for healthy lungs!!
But I do not have emphysema, the term COPD covers many things.
I have been to the gym 3 times and it will help you.
Please try not to worry too much, if they say its 'mild', they mean it!!
Sorry I did mean to say/write pulmonary rehabilitation gym. It does help to be as active as you can. I try to eat a 'balanced' diet (whatever that is?!) fruit, I also take multivitamins
One of the things you will be told at the gym is how important drinking a lot of water is every day
On digging out my med notes, I see that I do have 'extensive emphysema' along with a few other things for good measure!!
Well they reckon you should drink a couple of litres a day, (tea and coffee does not count)if I am honest I never drink that much myself, too busy with tea and coffee!. I guess you could always try the flavoured bottled water, (not sure if they will say that is alright) you can ask when you start pulmonary rehabilitation gym. You will have an hour in the gym and then they give a lecture about different subjects dealing with COPD for about an hour.
Another plan, mix the water with whiskey, they call that the alexia of Life?!!
I have emphysema, Vonnie, and was diagnosed at 44% fev1, i.e. moderate and am now at 33% last time I had a PFT done, around 3 months ago. I also have asthma (since my mid 20s) and more recently bronchiectasis which many here have. Just out of hospital having had double pneumonia and type 2 respiratory failure and struggling to get back to normal, but it will be a long while.
Before this episode I had managed to keep myself well for three years but that time had to end sometime! I was only using ambulatory oxygen for walking and 'stepping'; never needed in my home. Also I lift weights and my O2 saturation stay the same without needing oxygen. At the moment, back home from the hospital, I am on long term oxygen, just half a litre a minute, and starting to not need that.
We are all different - some who are mild can get quite ill, while others who are stage 4 are still out there working for a living. There are many on here at all different stages of copd and other lung diseases. Some are newly diagnosed and wanting information, the others have accumulated loads during their time living with it. Feel free to ask any questions you have. Some people cope by getting as much info as possible, others prefer not to know the numbers or other stuff come to that. Im one who feels that knowledge is power.
Exercise and diet will help a lot - get into an exercise programme. Many here do pulmonary rehabilitation, which is evidence based to help our functioning. Try and keep away from infection and pollution. Tell your family and friends to stay away if they think they may be sick. If you are more anxious not knowing stuff, then tell your healthcare people that and say you want to work in partnership with them. As I say, we are all different. Good luck!
Well I got out my med records etc. and like you it seems I do have extensive emphysema with fibrosis, if I am honest to do not like to read all my notes too much, I just go by how things are on the day! My COPD is Gold but I have a heart problem now due to the COPD, never did do things half way!
We seem to travel down much the same road, I had double pneumonia a couple of years ago, 10 days in hospital and I think I was lucky to get out to be frank. I seem to have started downhill from then, last year 3 attacks of pneumonia then a blood clot in one leg, lost my best friend (my dog) put on oxygen tank for when I needed it...but now have to be on it for at least 15 hours day. May the Force be with us!
Hello. Welcome. Lots of friends on here to share experiences and always someone to talk to. It helps when people understand .