I've been meaning to write a post for a few weeks now but couldn't bring myself to for a while with everything going on but after seeing how great the community is on here I think it would be good for me to share what is going on and hear from people who can shed some light on a things.
I'm 23 years old and have been struggling with my health for a few years now. I've had asthma since being hospitalised with bronchiolitis when an infant but until 2016 this had never caused a real issue. In 2016 I battled with near constant chest infections (I think I had around 12 lots of antibiotics and 3 lots of steroids) and got positive sputum samples for haemophilus influenzae and pseudomonas. However, after receiving a 2nd vaccination for haemophilus influenzae, I received clear results for both bugs. In January this year after getting a whacking chest infection needing antibiotics and steroids I've had a positive result for pseudomonas again and not felt well since, although after searching the posts on here I don't think pseudomonas ever really went away!
Even when feeling well (which is rare at the moment) I am constantly coughing stuff off my lungs and always feel like I have a chest infection and as soon as I get tired and my immunity drops I get really ill again. I've recently been passed over to a new respiratory consultant who is finally going to try and get to the bottom of things rather than just giving out antibiotics. At my last hospital appointment I had various bloods taken to check for cystic fibrosis and a chest x-ray with a CT scan pending. I also have an immunology appointment coming up in April. I had the sweat test as a baby to test for CF but the consultant wants to rule it out as a possibility. He was saying he thinks it sounds like it could be bronchiectasis. However he did say there was also the possibility it could be something immunology related because after the 2nd HIB vaccine I was well for a good 7-8 months so will be interesting to see if I have built up a resistance to the bug.
So currently I'm just waiting for the results from everything but after searching on here most of my symptoms seems to point towards bronchiectasis and pseudomonas which seem to come hand in hand. I have other health issues on top of this with spondylolithesis in my L5 S1 and an anaphylactic nut allergy and finding it hard to stay positive because of all the scary information out there. I'm just finding myself getting upset and really worried about the future. I'm an active person (own a horse) and nearly finished my primary ed degree so I'm extremely concerned my health might stop me from my hobby and my future career. I'd just love to hear from people who can offer information on living with bronchiectasis and pseudomonas because the great unknown is a bit daunting at the moment!
Sorry for the essay. Didn't realise how long this would end up when I started!