Good evening, I’m new here and I just need a sounding board. My 51 year old partner has been having problems since nov 17, and although not diagnosed formally had been told that he has ILD and that has caused other serious complications (autoimmune haemolytic anaemia) and is now on oxygen at home in the evenings.
Due to the progression of his illness he is now having to give up work (lorry driver) and consider disability payments. He has undergone all the tests for a lung transplant and is an ideal candidate for the prOcedure (never smoked, non drinker, healthy lifestyle, not too overweight, has attended every appointment etc) and has passed all the usual tests (bone density, angiogram, lung function, bloods, CT, etc) and is rapidly deteriorating. We have contacted the consultant and asked for a closer appointment and he is due to attend oxygen assessment next week for ambulatory supply.
His oximeter is regularly below 80, and I am seriously worried about him. He is so strong and is currently still working full time despite his poor condition.
I am after advice on anyone who has experienced similar prOblems. Is it worth me paying to see a consultant privately (would this speed the process up?). I am worried about how we will manage financially... being a young family and running a family business on top, advice is very basic and sources of info is limited. .... I guess I just need a direction that I can push in so that I can support him in the best way possible.... thanks in advance x