British Lung Foundation
35,346 members42,706 posts

What can the Royal Brompton do for copd that really makes a difference?

I’ve got asthma that’s permanently done my airways in, it’s all good getting sent to the Brompton but I mean it’s a well known thing that there’s no curing airways scarring?

25 Replies
oldestnewest

I'm very envious, I'd be thrilled to have had my asthma & scarring referred to The RB, one of the best centres for lung disease in the country.

Very best to you with your referral. P

10 likes
Reply

You can asked to be seen by them get go to send a letter

Reply

Hi Ricky. Where do I start? I've been going nearly 25yrs. I doubt I'd still be here if I'd been left to the mercies of my local hospital. There are so many benefits: investigative tests & a detailed diagnosis, using state of the art equipment, the benefit of world-leading research, referral for treatment of any other lung conditions or complications you may develop in the future, lung-centred physiotherapy & pharmacy services, not to mention everyone you meet is an expert in their field. I am mainly treated for bronchiectasis but because this is partly connected to an inefficient immune system, I've also seen an immunologist, and an allergy specialist. I've lifelong severe asthma too, which has recently become uncontrolled, so that's next on the list. And if repeated infections cause heart problems, you can see a cardiologist. If I were you I'd put your positive head on & grab the chance :)

ps I've just noticed your pic, and how young you are. I wish I'd been referred to RBH for asthma at your age - I might've avoided some of the complications I've had. I think you'll be really impressed. It's a bit of a trek but well worth it. Parking in adjacent streets is usually ok, but quite expensive. My local hospital is still involved with my care but I'd never again rely on them to look after me, they've done a rubbish job so far.

17 likes
Reply

That does make me feel a lot better, hopefully I get answers, really does sound like they’ve got something to pull out of the hat, thank you

3 likes
Reply

Good luck! I really hope they can improve things for you, Ricky. Let us know how it goes.

2 likes
Reply

What a cracking response and a real tribute to the RBH,take Hanne's advice Ricky and grab this chance with both hands and teeth if possible.....skis

4 likes
Reply

Great response, well done. Hanne62

1 like
Reply

Didnt lady di visit the brompton when she was alive.im sure i remember that.

Reply

I did like lady di.or princess diana.yes i recall lady di had a lot 2 do with said hospital.how does a person get referred there.kensington is a nice postcode to live in.

2 likes
Reply

GPs or your hospital consultant can refer, if they think you need more specialist treatment than you’re getting at your local general hospital.

1 like
Reply

My GPs refered me to the local hospital for tests before asking the RB to see me, I'm just keeping my fingers crossed! Good luck to you.

Reply

I have been going for 6 yrs I woukd be died by now because I have heart issues to which my hospital missed also so they are wonderful there let me know if your driving up as I have a tip on parking hunni if you are good luck val

3 likes
Reply

I’m gonna get the train up I think, driving sounds like a nightmare in London

1 like
Reply

OK hunni we have been doing so long now it's not an issue for us do you get benefits if so you can claim yoyr train fare back either on the day but need to go over to the other hospital and the office is shut between 1 and 2 or you can send form and tickets you must must keep them send them, then they will send you a cheque in the post takes 14 days if you want to claim on day take benefit letter with you OK x

1 like
Reply

I don’t get benefits only had to stop work in jan cause it got too hard with my breathing but come to mention it I’ll look into that as it may help a bit till they get me grafting again as I’ve got no income atm

Reply

I’ve been a patient since ‘97 with heart and lung problems. It is a highly specialised hospital with world class research. I have always said if Brompton can’t help not sure anyone can. I am under 4 consultants, all staff really kind, helpful and understanding. At the moment waiting for tests to see if I am suitable for valve implant as not fit enough for full blown surgery. Please let us know how you get on and good luck

3 likes
Reply

Just go! Trust the others on this forum, they know what they're talking about! And stop worrying and second guessing. Take care. 😊

1 like
Reply

Id go.

Reply

They're the best (together with one or two others) in the UK and for some things BEST IN THE WORLD.

2 likes
Reply

Just gotta hold on 4 months till the appointment but buzzing to finally go, hopefully they can improve my quality of life and get me working again

2 likes
Reply

Great!

Reply

Hi Rickybenfield1998.,

Could you please advise me how I could get an appointment to go to Royal Brompton .and where is it ?

Thanks in Advance.

Best wishes

Susan Cm.

Reply

I’m a bit of a weird case, I’m young and always struggled with exercise always kept fairly active but could never go the distance and my lung function has always been 67 percent and I had an exacerbation in December and have been struggling since with breathing and fatigue but don’t have asthma attacks just a constant breathlessness, as this was hard to get hold of my specialist at the hospital sent a letter to the Brompton, you have to be referred by a specialist I think, there may be ways of trying to get hold of them yourself I’m not too sure, sorry I can’t be too helpful but I hope there is a way you can see them

1 like
Reply

Thank you so much Rickybenfield1998 ,for taking time to answer me ,my doctor is anyway going to refer me too a specialist,so you have been a big help , thanks once again 😀 wishing you all the best.🙏

Susan Cm

1 like
Reply

Be thankful you are going to such a great hospital many of us have to make do with a general nurse at the gp,If anyone can help you it will be the Brompton i wish you all the best x

2 likes
Reply

You may also like...