I’m 42 and not feeling too good at the moment, my uncle age 47 and Dad age 60 both died of IPF in 2015 with 3 months of each other. My other uncle age 60 is now also suffering with this disease. Another uncle is suffering with emphysema. Their mum died of COPD and emphysema back in 2005. I also believe their mum’s. 2 brother possibly died of some sort of lung condition.
I’m feeling slightly breathless, my heart feels like it racing most days. I’m feeling achy on both my sides and upper back. I’m just not feeling right inside and have got it into my head that I have IPF. I went to the Dr’s in December and he sent me for an X-ray, full bloods and ECG. I saw the Dr at the beginning of January and all my results were fine. But due to the breathlessness and family history he referred me to the hospital for a lung function test. The hospital had referred me for the LFT about 3 weeks ago which the reapiratory nurse said my results were fine and I did not need to do the 6 minute walking test. I have also been referred for CT scan which I’m having on Monday Night. I then have to wait an appointment with the consultant which is a 3 month wait from he End of January so it’s looking like I will have to wait until the end of April to get my results. I really don’t think I wait that long. This is really getting to me. I have a 6 year old son and feel so devastated that I could have this disease and that I’m not going to see him grow up.
Sorry for the long winded post, I can’t really speak to my husband as he seems to think it’s all in my head and that I want to have this disease.