British Lung Foundation
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Hospice

Hello have Been lying low for a bit not feeling so great. And the changes to the site have caused a lot of frustration nearly threw my pad in a huff seriously have been trying tosend messages told I have no messages had messages awaiting replies so finaly on the 4th day i have managed it .Then when it came to posting this couldnt find it will i find it again i ask myself. Anyway reason for the post got a phone call from the hospice today asking me to go in tomorrow as a inpatient they are going to ascess me sort out my Meds and help with the anxiety has you can imagine my heart os going 10 to the Dozen I was suppossed to be Going to See about getting Back on PR on friday but if it is same as before cant because hospice wednesday Breathe easy monday Best wishes to you all

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Hi Margaret, good luck hope the hospice gives you the help you need. I will be in touch every day , keep fighting my friend. Love Bernadette 😳 xxx

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Thanks Bernadette im hoping they can hopefully they have internet hope you ok love Margaret xxx

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Thinking of you Margaret and hope the hospice can help sort things out.

Wishing you well as always. Xxxx

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Thanks sassy would be great if they can help me i am at the end of my tether love Margaret xxx

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It's lovely to hear from you Margaret. I think the hospice is a great idea and will help you no end. I hope everything goes to plan. :)

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Thank you Mrs M ummy it was such a shock to get the call on a sunday afternoon I need to do some re jigging was to go for assesment for another PR course on friday however the days are when i go to the hospice and Breatheeasy must phone them when i know exactly how long i will be in hospice im getting in a bit of a pickle with myself the wind is howling outsde and my head is whirrling inside Best wishes Margaret 🍀

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Sorry to hear about frustrations, Margaret. Things do get out of hand at times and we don’t know where to turn so thank goodness for this website where you can be assured that someone cares enough to let you know that you are in their thoughts.

God bless you

Bill

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Thanks for your kind words 😷

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That's all sounding good, Margaret. You've shown determination getting back on here and now the hospice is going to sort you out. :-)

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I would be over the moon if they can help me in some way just know cant carry on with theway things have Been take care xx

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We'll all be rooting for you and wishing you well Margaret. xx

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Hope it all goes well for you Margaret xxx

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Thanks i am trying to settle myself down for sleep But wind very Blusterry and my head is all over the place xxx

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That all sounds a good plan. Hospices are excellent and go at things very differently, have more time and can really assess your needs.

Good to hear from you again.

Love and the gentlest of hugs

Kate xxx

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Thanks I have had reflexology this morning. And accupuncture. all very laid Back also seen the Doctor who has wrote me up for sleeping tablets whilst im in here x

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Hi Margaret

The joys of internet 😃

All those appointments keep us on our toes..we go through the motions from one to the next..still we are lucky to get the help and care..

Best wishes Margaret 💐💕

Fran

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It is less stressfull than the hospital although I had a Bad night last night I had forgot my evening primrose tablets and 3am this morning had to buzz nurse my pillows and nightie where soaking she was very calming Take. Care 😷

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Thank you 😊

Ok that’s good to know Margaret..

Ahhh they must be effective those primrose tablets I have never tried them. Which ones do you take?

I am supposed to quit oestrogen as I have LAM it is not advisable but I still have a minimal dosage..we are not allowed phytoestrogens either like soya products..

I am glad the nurse was there for you Margaret. Hope you have a better night tonight xx

Fran

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Hi fran just primrose oil of the shelf xx

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Ok thanks Margaret xx

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Take lots of care.

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Thank you

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Hello Margaret. Sorry you were getting stressed with the changes to the site. Takes time to get used to. Sending much love and hugs.

Cas xx 🌹

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Thanks cas these things are sent to test us xxx

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Sorry your having problems with your health and the site. Have to say I am struggling with the new site too, Hope your stay in the hospice helps sort things out , take care and every best wish, catch up with you next week after my short break up north xx

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Hope you have a nice Break. In my neck of the woods. Yes cant get away with changes .They are very good here in hospice when I got stressed they really helped I have had issues with the Bath have developed a real fear so they are going to try and help me overcome it xxx

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Morning, hope all is well with you, understand your concerns about bathing. I have a walkin shower now with grab bar for support. Showering uses a lot of energy when the lungs are failing. Give it time and I am sure you will overcome your fear with help. I always fear a fall especially when you are on your own like I am. Best wishes xxx

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Take care....know we are all thinking of you,even us from Downunder!

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Thank you for your kindnesss .

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Yes, you are right about the frustration on the sight. I am constantly being knocked off where I am trying to get to! The numerous ad's and junk mail are taking over! The site is not the same. Took me nine trys to finally get here! When I try to post I am taken back to where I started! Any one else having problems? I have written to help section with no response! If it keeps up, I am dropping off! Whats with all the advertisements??

trishj46

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Advertisements? Where are they? I don't understand as I don't see any unless you mean the one BLF leaflet promotion at the top.

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Everytime I try to get on line, I get knocked off and sent back to

where I started! THere are ad's-------Be glad if you are not bothered by them!!

trishj46

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I agree

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Thinking of you Margaret. Hugs from Cornwall.

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Thank you judith .

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Hang in there my friend ,keep fighting .Hope you see some improvement .xxx

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Good to hear from you again. I’m glad to hear your news about the hospice. I hope they can help with anxiety problems as well as sorting out the right meds for you. If you can get over the site problems please keep us posted.

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Hopefully They can sort me out fingers crossed cant carry on way things are at the momment .

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Oh dear Margaret, what a lot you have had to deal with. The PR and Breathe Easy will still be there but if the hospice can sort out your meds and help you feel better it will be worth the wait. Hope the help people get back in touch with you about your problems in getting on to the site very soon.

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You are right getting problems sorted takes priority .

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All the best, Margaret. Hope you get on ok at the hospice and you feel better when they've sorted out your meds. I have missed you! xx Moy

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Thanks for your kind reply Do hope they can help they are lovley staff last night when i had a bad do with sweats at 3 am nurse got me changed and made me a hot chocolate xx

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Hope they sort all your meds out for you, take care x x x

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Hope they can thank you xxx

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Thinking of you my dear. Hope you get to PR soon and start feeling Better after the Hospice. You have so many Friends on here, Yes the site does have changes but we nee to work our Brains to stay in control. Love n gentle hugs. xxx

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Would be so good to be rid of some of my pain and anxietys I am gratefull for all thesupport I have had on this forum amazing xxx

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can any one advise please ive got copd and asthma i live in a 3 storey flat and finding it very difficult to climb 3 flights of stairs is there any way i could ask for help in moving somewhere suitable its just getting me down has i feel isolated not been able to get out thank you

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This may not be seen here by many members. Why not make a separate post? There is some help here if you need it. healthunlocked.com/blf/post...

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Margaret, hang in there. The hospice will be super careful and thorough and then you can get back to your PR a bit later, hopefully with more effective medication and less anxiety. Thinking of you :)

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Thank you Jean wouldnt that be something heres hoping Brst wishes .

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Hope you get what you need this time. Mx

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We can but hope everything is crossed xx

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I'm so glad to hear from you again. The hospice sound as though they mean to sort you out by hook or by crook! With a bit of luck you will be a spring lamb soon. Wishing you all the best in the world. Thinking of you and Frank xx

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Would be lovely to rid myself of these anxietys mind you I was suppossed to begoing to be helped with Bathing this morning Because i have had some issues I have asked now it looks like evening so I am knawing at my knuckles pathetici isnt it Best wishes to you and the Headmaster xx

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I hope the bathing goes well and you feel better for it. You can't avoid the anxiety sometimes. I am getting fed up with having to do NHS admin for them. Doesn't help when you are gathering so many health problems that you are getting to know all the local hospitals. I am due a cataract operation next week. I have already told them about heart catheterisation and sent them the result, which they have lost! Sent it again this morning, but still have to ring next week before I go to see if the anaesthetist agrees to go ahead. The only thing that cheers me up in a strange sort of way is the thought that I am not alone, but we shouldn't have to do it! The Headmaster is well, and still sitting patiently in various waiting rooms. Bracken thinks it's boring sitting in the car, but a dog doesn't trust his people to manage by themselves. He sends a waggy tail and hopes you enjoy the bath, but can't imagine why humans are so keen on bathing as it seems an overrated activity to him. All love xxx

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Sometimes it feels like we should be on the pay role for some of these services you seem to be doing all you can to help them then they blatanly loose the evidence shocking Hope yourop goes well i was told last year i had cataract. But it needs to mature wish could get it over with sight is precious hi to Bracken not a care in the world all the best to you and yours xxxx

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I couldn't do a worse job I sometimes think. Bracken could probably do it too. At present he is playing with his squeaky ball, at nine he will curl up in his sitting room basket, and at ten he will ask to go to his bed in the conservatory (heating on of course). Hope you are feeling a bit better this evening. Best wishes to you xx

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All the best Margaret! I hope this hospice stay will be a blessing in disguise for you. It certainly can't be any worse treatment than you have had to suffer this last year! It sounds like it's going to a holistic exercise in which case would be terrific if they can sort out all round difficulties you have and are experiencing, and in a more calmer atmosphere than in hospital.

Regards Ann xx

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Thank you ann it is in deed much more calmer than the hospital and it feels like people are working towards doing as much aspossible to help you atmosphere totally diffrent to convential hospital Best wishes xxx

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I hope the hospice helps you.they sound dead caring bringing you hot chocolate.i also suffer from anxiety eversince I was 19 when I had a breakdown still suffer from it 52 now.i have a good medical team for my anxiety so I am lucky there.

hope you have a well earned rest was not active on the site last year but read all your messages and could not believe how you were treated by the so called professionals.be well and calm.xhelen

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Thank you Helen other health care people shouldtakea leaf out of the hospices Bookthey are all amazing people doing. a very hard job But they do it with a smile nice to hear from you xxx

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only just come after few days , just to wish you all my very best wishes Margaret, be thinking of you , hugs xxxxxx

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Thanks very much most gratefull for your thoughts xxx

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