Stage 2 COPD / FEV1 60% - Life expect... - British Lung Foun...

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Stage 2 COPD / FEV1 60% - Life expectancy?

ggeorgiou
ggeorgiou

Hi,

Firstly, I know nobody can answer this question, but I need some kind of hope to cling onto.

I am a 35 Year old male, recently just been diagnosed with stage 2 empthsyma with a FEV1 reading of 60%. I currently do lots of excercise, treadmill, walking etc. DO about 10000 steps a day. Not really feeling the affects of COPD at the moment and only get breathless if doing vigorous excercise.

I have a yound daughter and I am petrified that I wont see her grow up into a little girl. Realistically, how long will it be until this disease grabs hold of me. I have smoked in past (not a lot, about 5 a day), but haven't touched a ciggeratte since diagnoses about 3 months ago.

Thanks,

George

18 Replies
oldestnewest

The only thing I can see that may result in you not seeing your baby daughter grow is the anxiety and stress caused by your diagnosis. Stay off the cigarettes, stay active, relax and enjoy your family. :)

ggeorgiou
ggeorgiou in reply to mrsmummy

Thank you so much. It makes me cry just thinking about not seeing her grow up. I need to get my head right and think with a positive attitude.

mrsmummy
mrsmummy in reply to ggeorgiou

There are members on this site who were diagnosed at a later stage who have already lived long enough to see children grow and are still here. Anxiety can be very debilitating. If you cannot overcome it do see your doctor for some help.

ggeorgiou
ggeorgiou in reply to mrsmummy

My wife seems to think I am depressed. This year has been pretty bad for me as have been diagnosed with IBD also. I think I do need to see the doctor for depression.

mrsmummy
mrsmummy in reply to ggeorgiou

There are forums on HU for IBD - healthunlocked.com/crohns-c... and healthunlocked.com/bdogf

Depression can have a terrible effect on other conditions and I would encourage you to seek help.

I have 43 years and dx with mild copd last year ( 71%). I also have two young children. At the time of my diagnosis, I was scared and for a while I had many black thoughts. However, I had stopped smoking a few months before and started like you looking for information on the internet. The more I read, the more confused I became. I found this site and another one (CPOD Fundation.org) that was the game changer for me. I started hiking daily from 7 to 10 km, I can not always walk every day, but at least 5 times a week. Take my medication every day and get the flu and pneumonia vaccine. I have some care with food, but this aspect I have to improve a little more. What I try to avoid as much as this is a great danger for us is catching the flu or colds and this leads to a lung infection. In this way we lose lung functions and the decline is accelerated. It is not easy having children at home, but I do avoid places with lots of people in the flu season and use NasalguardCold when I go to spaces with a lot of people or I feel that at home people are getting sick. In fact, I feel better now and more active than when I was diagnosed, but this is a progressive disease but we can slow down with the right measures. We're talking about decades. We can already see our children grow a little more. That's my biggest goal. I hope it's yours as well. I hope science will bring good news, however, something that delays progression. hug

Eat well, no smoking, not much alcohol, stay active, take vitamins (C and D3 very important) and relax. Maybe mediate, yoga?

No reason why you shouldn't life a short long as the next person. It's not a death sentence, it's manageable. My aunts was diagnosed in years ago, she's still going strong at eighty seven now!

ggeorgiou
ggeorgiou in reply to Shancock

Thanks - I do take vitamins D3 and was also thinking about taking Omega 3 as I have heard that essential for COPD sufferers?

Oh and get the flu jab and go to your GP and ask for the pneumonia jab too. Get it done asap it will help.

ggeorgiou
ggeorgiou in reply to Shancock

I have had the pneumonia jab a few weeks ago and also had last years flu jab, which I will get every year from now on.

I have had it since a trauma at birth and my daughter will be 50 later this year. Keep doing as you are and keep off the fags and you will give yourself every chance of a long and happy life despite the lung condition.

Good luck and best wishes.

ggeorgiou
ggeorgiou in reply to Tetrazzini

Thank you for telling me your story, it brings me hope. I havent touched a fag for months and the smell now detests me

Exactly as below never touch another cigarette and carry on as you are exercising and eating healthily and no reason why you should not live into old age so stop worrying and enjoy what you have. If any help I was diagnosed at around age 40 smoking 15 a day which I did not stop doing until I was aged 54. I am still here now aged 68 or almost so you have done well to quit those cigs as quickly as you did. keep it that way they really are a killer.

Don't worry,I have been smoking for 73 years I am still here and I have COPD,plus lung cancer,always smoked roll ups,keep taking the pills

Thanks for telling me your story ginger, gives me hope. Do you mind me asking how much your FEV1 declinded over those years since first diagnoses? Do you still lead an active life?

I am going to speak to my GP tomorrow when I see her as strange as it sounds I have never ever been told what my FEV1 is so hopefully I shall find out.

Eat healthily, make sure you have a COPD plan from you docs, never get fobbed off if you feel off colour and get on with your life! 👍💕

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