Hi Usgang and welcome to our exclusive little bronch club. I have had bronch all of my life so don’t know any different. Yes, exhaustion is part of it particularly when an exacerbation is going on. It’s mainly a matter of getting in control. Making sure that you keep clearing your lungs so as not to let the bugs have a party, take your antibiotics at the first sign of an exacerbation. Work at creating a balance between getting plenty of exercise and fresh air and sufficient rest. Pacing oneself. I was taught at a very early age how to breathe and exercise to loosen and expel the mucus myself, rather than relying on mucolitic drugs. They have their place but being in control of your own physio is generally better in my opinion.
If you can persuade your doc to refer you ( hopeless in my area) a course of pulmonary rehab could be very beneficial. It will give you confidence and many people say that they enjoy it.
You need a good bronch specialist, not just a general respiratory consultant. Find out if your consultant is a bronch specialist. If not, look for one in your area, usually at large teaching hospitals ( an ‘interest’ in bronch stated on a website is not the same as being a bronch expert). Take the name to your GP and insist on a referral.
The vitamin D is interesting and I believe that its part in all lung conditions is under researched. Since it was discovered nearly three years ago that I was very low in vit D I was put on the very high dose course and then maintained with 1600 iu D3 each day. My appetite is better, I have more energy and I have not had a viral infection since starting it. I have only had two exacerbations. I cannot say whether this is luck or vit D but I am keeping my fingers crossed that it continues.
I hope that helps.