Hi, I'm new on this site and as I have been worrying my self nuts, thought to write some thoughts.
My hubby was diagnosed with Emphysema Stage 2 (his FEV1 is 63.25%) and also hearth wall thickness last month. As I have read, both of them are incurable and just a matter of time how the diseases progress. He collapsed three years ago and ever since he has been between doctors. He feels fatigue all the time. Even little bit of physical makes him breathless. He has pain in his chest due to his heart condition most of the days and feels ill. When he has chest pains he is taking so-called 'TNT' to get the rhythm back. Those days when he played football with our now 14 years old son have long gone and our son now plays football and other games with his little sister, what usually fathers are doing.
The issue in my eyes is, that he seems to take it all very easy and relaxed, while I'm worrying for both of us. Blames NHS for taking so long to find out why he collapsed and why he feels like he does. At the same time he is not helping himself at all and my nagging on him, that he has to look after him better, is not getting us anywhere. He won't listen my please to quit smoking nor drinking, he is not active at all (no exercise in any form), and he loves his greasy food. He's overweight.
I have read, that the person who has emphysema should in the first thing quit smoking if they smoke and get little bit exercise into their everyday life with healthy eating. What about, if they are not willing to do that? How is the disease progressing then? How long does he have if he is not changing his lifestyle? If he eats healthy food just once a day, when I cook and rest of the time, what he gets from the fridge or cupboards? So many questions, I know, but I have three children to look after and I would like to prepare them just in case, it is just around the corner...
Sorry about my long letter, but I do not know where else I can get the answers. Thank you