Breathe easy

[Time_2_drink]

Well no Breatheeasy. For me today. It isBitterly cold even in Bed. With heating on sats this morning 59. At worst 80 at Best. Frank phoned. Breathe easy they have had quite a few people ringing to cancel I finish my abs tomorrow then hopefully can start Azrithomycin only got to take a couple before last infection .The matron is coming today first visit since i came out of hospital 12days. Ago when frank spoke to her colleague on friday she couldnt understand why i have not had any visits from first response team who usually come in for a week when ive Been in hospital .Things are really getting me Down at the momment. My Breathing is shocking and still getting pains nearly aa year now waiting to have Bronch confirmed apparently im Booked for a scan not sure when hope that i can spend xmas at home this year but feeling better than i do everything is a effort. getting washed and going to toilet is like climbing everest moan over keep warm and well as can be x

[Hidden]

Oh Dear..it sounds so badly organised..I hope you get help from the Matron today..

Let us know how you are xx

Fran 💕

[Time_2_drink in reply to Hidden]

Thanks. Fran will do frank has got Back in Bed he is full of cold and snoring away xx

[Hidden in reply to Time_2_drink]

Maybe the Matron can see him and all, it’s that time of year but you don’t want to catch it xx

[Hidden]

Sorry you missd your Breatheasy, Margaret, but it's more important to keep warm in this cold weather. Try to keep cheerful.

[Time_2_drink in reply to Hidden]

Thank you Don take care .

[newlands]

Hi Margaret hope you start feeling better soon and matron comes soon

Lost my matron she retired in April so haven’t anyone to get carer s in for me I can’t even get to my antibiotic s that someone over the phone said I had too take I

you take Care Margaret

Dorothy

[Time_2_drink in reply to newlands]

Hi Dorothy. Sorry you lost your matron as i have Been told. Have matron. For 8 weeks. Then have to be rerefered by Doctor etc also what i find silly is if you hospitalised. For more than 3days also have to be rerefered which is a bore you take care Dorothy and i hope you get your antibiotics .

[Pam1952]

I hope that you start to feel a bit better really soon. Keep your chin up and take care. XXX

[Time_2_drink]

Thank you pam trying But finding it a struggle like many others xx

[Lilian226]

I hope your visit goes well with your matron Margaret. It is very cold, try to keep warm. I don't suppose you're suffering with your hot turns (sweats) at the moment. I've got the heating turned up to 20 and its still cold. Wear a warm dressing gown with your kaftan! Talk later. Love Lilian xxxxxx

[Time_2_drink]

Hi lillian Heating is on 22 frank full of cold which is not good for Both of us I really finding the slightest little thing a struggle hope you Doing ok love Margaretxxx

[Lilian226 in reply to Time_2_drink]

I can imagine how you must be struggling especially with Frank not being well. Wouldn't it be nice to have a Home Help or something. Someone who could tuck you up with a nice cup of tea whilst they do the housework and cooking and pop to the shops and chemist etc. etc. It would take a few problems away and you (and Frank) could concentrate on getting better. Stay warm tonight. Love Lilian xxxxx

[Time_2_drink in reply to Lilian226]

Frank. Not keen on that idea plus we would have to fund it ourdelves. He says he will carry on whilst able xx

[Carnival567]

Hope everything gets organised soon for you Margaret, it seems such a waste of time all this faffing about, not to mention the anxiety it causes. It is very cold here too, unusually so, apparently not snowed for seventeen years. The Forest of Dean looks beautiful in the snow, not that I have been running about in it, but sat in the car while Peter walked Bracken. I hope you and Frank keep well xxx

[Time_2_drink in reply to Carnival567]

Long time for no snow I imagine the children in the area will be delighted I Bet Bracken wonders what is going on .The Matron came yesterday then told me she was off on leave till 29th when she will see me again dont believe it happening again she seems quiite sure that I have Bronch I gave her a sample But the Hospital Dont want a sample till 29 th she said colour was classic .I have Been Booked in for a HRCT scan and then they willspeak to me about results. Apparently im to see a Doctor who specilises in Bronch and now that i am no longer on the list at hospice for a bed. I am going to see someone about pain management .Also Matron has given me a prescription for extra lorazapam to help with my anxiety I am suppossed to Be going to the hospice tomorrow not Been for a couple of weeks But im finding it difficult to get Dressed and leave the Bedroom for more than a couple of hours in my foolishness a couple of months ago I Bought some tickets to go to the panto with Breathe easy stupid idea .How are you Doing are you getting along with the oxygen xxx

[Hidden in reply to Time_2_drink]

Awful being away until the 29th she should have replacement!!

[Carnival567 in reply to Time_2_drink]

I do hope you get a proper diagnosis at last, it seems ridiculous that you have such problems and they haven't properly addressed it. At least an expert in bronchiectasis should be able to move the diagnosis on for you. I hope you can get to the panto it should take your mind off things a bit if you manage it. We are going to our grandson's Christmas show at his nursery. Should be fun, you never entirely know what little ones are going to get up to! As to the oxygen, I am managing it all right, but have not had a review yet as the nurse went to have surgery and is not back at work yet. With luck she will be back in the New Year, I hope she is ok. Needless to say there is no substitute as it is a very specialised skill. The cataract surgery has been postponed until February and I have to send the ophthalmologist the results from PFTs and heart catheterisation. I am still trying to get the results from the respiratory physician's dozy secretary. I have had the catheterisation results, which confirm pulmonary hypertension and a small aneurysm, so the next thing presumably will be an appointment to discuss that lot. Meanwhile I am looking forward to the family gathering at Christmas, especially as I don't have to do any of the planning! Love to you both xx

[Time_2_drink in reply to Carnival567]

The amount of diffrent medics you have to see for specific problems seems never ending wouldnt it Be good if every one liased whith each other your oxygen nurse sounds like mine i was due a visit but she was having surgery onher hand so waited 4 month for appointment I Expect you are looking forward to the little one n concert they are so lovely at that age never sure what they are going to come out with. Well took the Bull. By the Horns has they say i got up at 7 took my inhalers tablets tried todo some Controlled Breathing had half a lorazapam then took over a hour to wash and dress took another half of Tablet to calm me so for the first time in 2weeks i ventured out made it to the hospice had hair cut and styled really needed it few little Blips trying to control breathing Hospice had the chaplain playing xmas caroles junior school going in at 2 to do the nativity shame we had to miss it it was panto with Breathe easy couple out of emmerdale in the cast would you believe it i struggle to sleep at home missed over half of it sleepingloveMargaret xxxx

[Carnival567 in reply to Time_2_drink]

I am so pleased you were able to get to the hospice after all. Well done you! I hope you are not feeling too exhausted tonight. I had my INR checked today and confessed that I was a bit under par. Next thing I know I have a telephone conversation with the GP, an appointment next week and strict instructions to go to see doctor immediately if I get worse! That's the trouble with this illness isn't it, so up and down. Sleep well xxx

[Time_2_drink in reply to Carnival567]

Theres always something trying to knock you Back isnt there. I fell asleep watching TV my sats are worrying frank they have Been in the high 50 s low 60s over night He wants. To call 111 frankly. I have had enough of going into hospital. Unless i start to feel worse. I ant to sit it out xxx

[Carnival567 in reply to Time_2_drink]

Hope things improve for you soon xx

[Shirleyj]

Hope things pick up for you soon x x

[MoyB]

Your medical care is such a nightmare you could write a book about it now, couldn't you? Stay warm - as someone else said, it's a shame to miss Breatheasy but better to stay warm! Hope Frank soon recovers from his cold and you don't get it. Good luck with Matron. xx Moy

[Time_2_drink in reply to MoyB]

Hi moy would you Believe it she came yesterday promptly told me as from today she on leave till the 29 th. Had this scenario Before .She thinks i Definitley have Bronch looking at my sputum. And amount also all the pains i get. I have a HRC scan Booked but not got the date also a appointment with a Doctor who knows about Bronch a positive is she has given me prescription for extra lorazapam to help me with my anxiety I finish my abs tonight suppossed to be at Hospice tomorrow Hope i am able to make it love Margaret xxx

[MoyB]

I'm gobsmacked. She seems to go on leave every five minutes! At least you've got your prescription which is something.I'm glad you are going to see someone specialised in bronch - perhaps you will get somewhere at last. Hope you make it to the Hospice. xx Moy

[Time_2_drink]

I think she plans my visit around her leave never had consistentsy next thing they will be signing me off Back to square one I really need to try to stay out of hospital or i will loose. All appointments and it all stops really need to go to the hospice But finding it difficullt to get out of Bed and as for getting dressed no no was going to try a dry run today but not got the energy snow and ice outside stillxxxmargaret .

[Hidden in reply to Time_2_drink]

Keep warm Margaret..hope you’ve got all the shopping you need. Xx

[Time_2_drink in reply to Hidden]

Thank you frank keeps cupboards full wish i could be more hrlpfull xx

[oooodicky]

Hope you have a happy Xmas and frank both have a great new year better than 17, take care richy.

[Time_2_drink]

Hi that would be wonderfull a year yesterday when i started dreaded oxygen how are you getting on with yours hope you and yours have a merry xmas and good 2018 take care