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R1100S1 profile image
12 Replies

Hi

Just back from seeing Dr at St Luke's Bradford

My Asthma nurse revered me as latest spirometry shown some obstruction

Seems I have Bronchiectasis (if that's how you spell it) not really aware of it so time for some research

Told I have to give self physiotherapy and being referred to physiotherapist for instruction.

Any tips on supportive web sites etc

Eddie

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R1100S1 profile image
R1100S1
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12 Replies
stone-UK profile image
stone-UK

Hi

Some reading matter for you,

bronchiectasishelp.org.uk./...

Big jump from asthma to bronchiectasis

Are you seeing a specialist in that particular field,

Several members have the condition who can give practical advice.

R1100S1 profile image
R1100S1 in reply to stone-UK

Yes doc a specialist and link helpful

sarcoid1234 profile image
sarcoid1234 in reply to stone-UK

Thank you Stone as I also recently diagnosed with bronchiectasis. Your attachment will be very useful.

Knicho profile image
Knicho

As far as I understand you need to have a ct scan to get a definite bronchiectasis diagnosis? Have you had that? If so then there are lots of tips on looking after yourself that I and the others on here can share with you

R1100S1 profile image
R1100S1 in reply to Knicho

Yes had the CT scan that was reason for today's appointment. was more worried than I thought I would be about what the scan revealed (wimp)

Cheers

Knicho profile image
Knicho in reply to R1100S1

Bronchiectasis is all about looking after yourself and avoiding infections if you can winter is of course a difficult time for us! I always have my flu jab as early as possible, take vitamins, keep my distance from anyone with any sort of illness and use vicks first defence to try and prevent any illness should I go near anyone or feel a sore throat or anything starting. I’m also on mucus thinking drug and long term antibiotics but that of course is up to your consultant. You need to get into a routine of clearing the mucus which the physio will help with as the more it hangs around the more chance you will get an infection... anyway that’s just a starter there are so many more things you can do to help yourself x

in reply to Knicho

Great reply Knicho

heatt profile image
heatt

Hi what Knicho said and I find eating well, cut out sugar, and 20 mins or more excercise helps. I also find not eating diary and gluten helps me alot(less mucus) but quite a big step for anyone to do and may not work for everyone, but after the first month it gets easier. welcome to the group, dont hesitate to ask any questions.

R1100S1 profile image
R1100S1

Thanks all :)

Still can't pronounce the damned name

Knicho profile image
Knicho in reply to R1100S1

Me neither!

cofdrop-UK profile image
cofdrop-UK

This is the most up to date info on bronchiectasis, although this is still in the soft launch stage. We voted to put in the videos from clinicians to clinicians but if you're newly diagnosed you might want to dip into them later as there is lot to take in.

europeanlunginfo.org/bronch...

love cx

R1100S1 profile image
R1100S1 in reply to cofdrop-UK

Many thanks I had very little knowledge of condition until diagnosed and the info provided on here

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