Why WELL 3 rotten inhalers AND nebuliser and standerd atibiotcs is best all lung care involves WELL he said thats best NHS lung care gets and this nothing else.
Well i disagreed AND said if thats what you belive thats whats up with lung care.
So asked him about my IGM antibodes only to be told things are pretty bad on immunty antibody front.
So he was accused of cheaping out by trying other pneumonia jab when clearly ill and need refering to immunty doctor.
Well the said out of 12 point's you need score of 6 to be referd to immunty doctor.
Needless to say i scored 5 and had my January lung clinic appontment canceled.
So guess like other lung dieased WE are going to have to wing it.
Honestly Hidden it's enough to make you want to scream,dont you think. Things are bad enough referral wise at the moment.... just wait until 6 months on and more and our dear NHS is being crippled by too many managers/admin staff etc. I'm glad you have a wealth of information about your illness and can literally put these Doctors to task! Wishing you well.
Hi cheers its just mild stone in my journey i hope sure
Anyway its not all bad friend of mine was visating mate in hospital where my dad was AND he said things had inproved greatly on surgical ward asto demetia patients post op care wellbeing.
So given my grim news is nice to hear have done good too.
Oh Jeff that’s awful, he could have pushed the score to a 6 with a personal letter, phone call to the clinic..
I am so sorry..why don’t you phone the helpline and see what they recommend in that case xx
in reply to
Hi happylondon i would be surprised if the did out.
Only thing doctors go on about is them daft sedatives.
in reply to
What sedatives? If you sleep it off you won’t bother them so much lol
This self management thing that we find a challenge can be difficult.Hippocrates over 2000 years ago found thyme oil very helpful for his lung patients. I am also trailing Anicillin (garlic +).
You might want to talk to a top class herbalist.My results so far are promising I am a sceptic but I cannot deny results so far
In this aspect of alternative therapies to borrow from the Sound of Music "the hills are alive with snake oil salesman/manufacturers".I believe the Lamb family are just about as good as you will find.Brian Lamb has his office in Thurso and Sophie his daughter has a practice in Royal Tunbridge Wells.They are both well qualified and generous with their advice. Just Google either or both to get contact details.
My son in law uses black garlic (buys it at the supermarket), it looks and smells pretty bad, I myself cannot stomach it, but he loves it and claims it has greatly reduced his propensity for respiratory infections. Besides it is much more digestible. I googled it: "From a nutritional point of view, Black Garlic has a much higher content of allicin, the active ingredient in White Garlic that imparts its benefits, but without the odour. Additionally, Black Garlic is rich in amino acids and has almost double the amount of antioxidants when compared to White Garlic."
Please let me know how the Anicillan goes, I have bought some from a reputable herbalist and only just started when my consultant specified Colomycin nebulising for psdeudomonus . I stopped the Anicillan on the advice of the herbalist. Couldn't tolerate the Colomycin and Consultant now wants me to trial Tobermycin! if I cannot tolerate that then I'm thinking back to Anicillan
For me the ice is getting a little thin.Sophie Lamb says there are no contraindications with thyme oil and as she suggested Anicillan in conjunction with the oil am assuming that it too has no contra indications but I could be wrong.My inhalers are Seretide 500 and Spiriva.They are no contras with these two but I am not on a course of antibiotics currently.I am due an exacerbation in January (historical) if that doesn't happen I will believe the trial has been a success.However I would NEVER go against my Consultants advice XX
Could be Angie I have never had a negative reaction to my inhalers but we are all different.I believe there are some new inhalers aboutyou might want to chat with your Gp.
I also like to try out alternative therapies and haven't heard of thyme oil for lung complaints - how do you use it? Have also tried Mullein but didn't find any benefit.
I know sometimes they can take months to see any positive effects so perhaps I have given up too quickly.
Just one thing (having a very different experience of the NHS) the real problem is simply under-funding. If everything else is going up in price but your pay and taxes are not something is wrong - and that hurts the services we depend on.
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Lung transplant clinic appointment 
Had to cancel my Lung function tests
Aspergillosis and Hyperinflated lungs. 
institual lung disease
