British Lung Foundation
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Pseudomonas

Hellloooooo. I am from Toronto. Recently diagnosed with pseudomonas. Already diagnosed with Bronchiectasis, MAC, MAI in December 2016. I am 62 years old, recently retired Social Worker. I work out, try to eat healthy, do everything I'm suppose to do, and still get pseudo.....just diagnosed Fri. On Cipro..for 14 days then another sputum.

I am very sad and scared. This is not a bacteria u want to get.....Any others out there that I can chat with. It takes alit to cave me in....struggling✌️

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Hello Megan321 and welcome to the forum. :)

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Tk u✌️

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Don’t be scared Megan. I have been colonised with pseudomonas since 1986. I take cipro 750 mg twice a day when it gets troublesome and for the rest of the time I just make sure that I clear my lungs as much as possible so that there is very little fluid for it to have a part in.

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Tk u for your reply. Do u have any other Lung disease???? I feel better hearing from u. Glad to hear u r ok✌️

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I just have bronchiectasis but also have a heart condition. I am not familiar with the terms MAC and MAI. perhaps you can enlighten me.

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MAC is a bacteria in the lungs. Stands for mycobacterium. I also have a cavity. ✌️

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Oh yes, I knowof that bacteria. Luckily I haven’t aquiredit yet. What does MIL stand for. I’m not good with anacronyms.

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MAI stands for intercellular, which means u can get cavities. I have a small one that they r just watching for now

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I looked up MAI and MAC. They both mean the presence of the mycobacteria. I have many areas of cavities in my lungs. It can be part of the damage to the lungs which is bronchiectasis. Some people just have damage in the airways which become floppy and mucus collects in there. Some people collect mucus in the cavities. The mucus needs to be coughed out every day to discourage the increase of bacteria in there. I hope that your doctors get you on to a good system of control and treatment. Then you should be able to carry on with a fulfilling life.

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I take the cipro for 14 days.

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A very warm welcome to you Megan. Sorry to hear you have bronchectasis, MACand MAI. I understand you must be feeling sad and scared that you have grown pseudomonas but please try to be calm about this. There are lots of people, certainly with bronchiectasis who are colonised with pseudo and manage it very well, although it will raise it's ugly head and give problems. There is an interesting link here where there are some videos from clinician to clinician where the consultants discuss pseudomonas and eradication. It seems if this is the first time you have grown pseudo it could be eradicated but if not it can be treated. Manyt take Cipro. I personaly can't but can do my own IVs at home where I live. Hopefully the Cipro will work very well for you.

Hope you feel better very soon.

europeanlunginfo.org/bronch...

loe cx

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Tk u for your reply. Hope u r right...✌️

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Hi Megan, another |Bronch + COPD+ emphysema buddy here, I'm also colonised with Pseudo. I am lucky that I can take the Cipro with no side effects. Seems like you can too. Actually once you know it is the Pseudo giving you the infection and the Cipro works for you on the dose you are taking , then it does clear it up thankfully. I used to be on one AB then another for years and years before the Pseudo was finally diagnosed . The Cipro works a treat on me but I have been warned that once it does stop working it will have to be IV ab's next ( hopefully at home not as an in patient)

So join the club Megan :) :) :) there are quite a few on us here on HU

Love Sohara xx

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Thank you so much for your reply. I'm hoping the Cipro works. Have been on it 5 days now, and minimal improvement. I'm on it for 2 weeks. How long does it take before you notice that there's some improvement??

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Everyone is different Megan, but I do usually feel improvement within a day or two on Cipro, but it is a very good drug for me, the best antibiotic I have ever had , although do be careful it does have very bad side affects so do take care. The next best ab for me is azithromycin which I take all the time ( 3 x per week) Has your GP prescribed that for you yet?

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I was diagnosed with pseudomas and steph recently and prescribed seven days of fluoxicillin. Feel ok now had a bit more sputum yesterday and am wondering whether to put i.n A sample just in case it is still there.

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You are such an incredibly positive person.....so nice to hear. My hospital is Toronto Western, which is the top hospital in Canada for MAC. Thank God I have a very knowledgeable Dr, but there r so many flaws in the system. Please keep in touch. I hope u are well as well✌️

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