Nervously waiting for 30th Nov

[MSMichaela1966]

Going to the Royal Brompton hospital in London for a consultation for having lung reduction surgery does anybody here know of anybody that had that surgery done and what the outcome was any replies would be very helpful.

[Perce]

I had my right lung reduced 5 years ago and I am am pleased I had it done as it really made a difference, I have been relatively well since then apart from a recent bout of chest infections I am just getting over. Search my posts and you will find a lot of info on the op .

Hope your consultation goes OK and LVRS is good for you.

[Cliffordx in reply to Perce]

Hello I've had lung volume reduction on my right lung after being diagnosed with copd they anethatise you put an epidural in your back and go through under you arm to operate it' a little sore when they'e done but you will feel better x

[spooks36]

good luck for Thursday 30th. Might be a little sore aftwards, but I am sure you will manage that okay. keep positive. take care.

[Ergendl]

Good luck. Hope all goes well.

[Croydonia]

Hi, I had LVRS at rbh in August with a general anaesthetic. Recovery was a bit rough, but I was well looked after there. Unfortunately a few days after I came out of hospital, I became v v sob, and had to return to have one and a half litres of liquid drained from my lung. All well now though, I’m breathing much better, and able to do a lot more. It was my right lung, which had little function in the lower lobes. I would recommend doing pulmonary rehab before and after the op, as then you will be in good condition to cope with it. Good luck!

[Dedalus]

Good luck for your op x

[Angora]

If you put 'lung volume reduction' in the search box at the top of the page you will find lots of posts about this. Know that not many of us are suitable candidates, I was originally suggested for valves but consider myself very lucky to have had reduction via a keyhole procedure. I agree with earlier post that rehab before and after and keeping as active as you are able really does help even when you don't think you can stand up let alone walk ! Very best of luck on your journey xxx

[lKeith]

Missy_Miles

I have been through the tests but unfortunately didn't come up to scratch on the selection process and was turned away. My understanding is that there are various reduction processes. Surgery to remove the non working parts, Lung valves/Coils. All are supposed to leave one with less but more efficient lung tissue and therefore an overall improvement to your breathing ability. They are all good people at the Hospital and will give you all the information you require. If they do not feel that they can make an improvement they will tell you. Going there is nothing to worry about, their tests are thorough.

Good luck.

IKeith

[Claireblackley1973]

Hi I had this done in 2014 on my right lung at the royal Brompton under Simon Jordon. I was in for 5 weeks In total what should have been 7 days. There were a few complications with my lu g drainage. It' all done via key hole and obviously a bit painful initially and uncomfortable. At first I noticed a huge difference and things I hadn' been able to do for a while I was a me to again.about six months after in the winter I was really unwell and sufcerred frm chest infection after infection. My right leg constantly swelled to after op. and continues too now. They only told me after thst you are suceptable to a lot of chest infections that' one of the downfalls to the op. I Am now on constant antibiotics and oxygen 16 hrs a day. I wasn' on oxygen and didn't suffer too much frm infections before. I have just returned to.e frm hospital again frm carbon dioxide poisoning as .y lung ate getting to the stage that they are unable to break it dow n anymore. The hospital were great and continues to be for a while but I can't get any a aswers any more and they don't seem to help any more. Good luck and obviously it' different for everyone. People I have met have had good experiences with it. Generally I was petrified and it wasn' half as bs as I thought it was going to be. The nurses are fantastic. Good luck x

[MSMichaela1966]

Thank you all for the responses I attended the hospital today and i have been accepted for the Lung reduction surgery however they need to do a series of tests first. I'm going to do as much research as I can over the next few weeks.