It’s been a while since I’ve been on here but I remember it as if it was only yesterday. Where do I begin 6 years ago my life was totally torn apart when I got my diagnosis of multi system sarcoidosis my god was I scared (VERY) I was totally thrown into the unknown of sarcoidosis I remember at the start of treatment 120mg of steroids daily totally made me feel at my most vulnerable the effects of the steroids totally ransacked my head emotionally I thought I would never get through this at all . Every day was a massive struggle physical discomfort in my lungs every step I took was hard work without getting out of breath but now 6 years on I’m on steroids still but at a amazing low level 6mg daily. I now go for yearly check ups which has been showing improvement 4% I know that may seem very low for 6 years of treatment but it’s positive sign I know my sarcoidosis would never get into remission but I’ve learned to accept that emotionally but as long as my lungs can improve I’m happy. And I now can accept my diagnosis I feel personally for myself was the battle of accepting it I still have bad days physically when my lungs hurt bad but I now know how to deal with it when things aren’t good. Thank you to you guys who responded to my fears nearly 6 years ago xx.