Severe copd zero points for pip - British Lung Foun...

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Severe copd zero points for pip

Hello all, I'm new here and wasn't sure where to put this post but here goes, I hope it's in the right place. A year ago I was diagnosed with severe copd. I carried on working until a few weeks ago and can no longer manage it because of excessive tiredness and breathlessness. I applied for pip and was confident I would be successful, that the diagnosis would speak for itself. I had a home visit from an assesor who made lots of assumptions without any evidence or justification. When I filled the original form in I put lots of detail on about how I struggle from day to day. I do have depression and have taken tablets for a long time. The depression has worsened with my health but I didn't mention it to the doctor or copd nurse and this has gone against me. I got zero points on all descriptors and couldn't stop crying when I got the decision letter. Is there anyone that can help me with my mandatory reconsideration. Anyone had an experience like mine and how did it turn out for you? I have been to the citizens advice and they just filled in one box on the mandatory reconsideration form and said add to it what I disagree with on the assessors report. I have also just seen my GP who printed off my fev 1 results as I do not know if they have even seen it. I have also been in touch with my MP to ask for help but don't yet know what he will be able to do for me. Any help or feedback would be greatly appreciated. Thank you

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Hi

Have a read may be of some assistance.

citizensadvice.org.uk/Globa...

If you go to pinned post on right of page. Click on useful links. scroll down there is a section on PIP

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Thanks stone uk

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Tomorrow night bbc1 at 10.40 Spotlight programme looking at the effects of the change from DLA to PIP and speaks to claimants.

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Hi Bronagh......is the programme only available in Northern Ireland. My TV magazine says Hotel for Refugees at that time.

I wonder if it would be available on I player later....I will check.

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Yes sorry knitter I think it is only in N.I. But my husband thinks you should be able to get it afterwards on I player.

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Try benefits and work website there's a guide to help with appeals .good luck

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use these links, but seek the help of an advocate, CAB, etc.....

disabilityrightsuk.org/appe...

carersuk.org/help-and-advice

scope.org.uk/support/disabl...

First you must ask for a mandatoryl reconsideration, ( most of which fail, but do not be disheartened by this)

if this fails, you then have recourse to a tribunal, the majority of which are found in the claimants favour.

Please do not get overwrought by this, it appears devastating but have patience, you need representation and guidance, so you must seek these and as soon as you can.

I wish you well.

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'How to Win a PIP Appeal'

advicenow.org.uk/guides/how...

Good luck.

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People need to remmber you don't get pip for copd you only get it on how it effects you.

Doctors do i us lot a mis services by hiding the truth.

If you have saver copd even mild you will have bone dieases.

No if buts or expections

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I have emphysema, so does this mean I have bone disease? Maybe that's why I am always aching.

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Hi Twig This loads doctors don't tell us.

They even go as far as having us believe we are neurotic.

I would bet my last £1 you do

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O

I dont know what to say. I tried 2 years ago and did not get anywhere. I have a blue badge and was retired from work on grounds of ill health. I sent in copies of everything i had from occupational health my gp and the hospital.

The report came back at 6 points and you need 8 to qualify. At the time there was so much going on and i was so depressed about it i could not face going to appeal. They said they recognised i had a problem but did not qualify.

I have managed with a small pension and esa. I have started back at work doing permitted work. Sometimrs it is so hard but my employers are good

More recently i have stopped claiming esa and got another job. Managed 3 weeks at around 25 hours a week before going off sick with flu and a chest infection. So i dont know where this is going longer term. I could be starting all this again. Back at work but not right and constantly short of breath and wheezing.

I wish you luck with your claim but i think they have no idea how hard it is to live with a lung condition.

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I read recently about a website called "fightback4justice" which helps with filling in forms for PIP/ESA etc. There is a small fee for their admin costs. I have no idea how good (or not) they are but you may want to check it out. Good luck with everything.

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They are extremely helpful, also very busy, as soon as anyone gets a claim form you need to get in touch asap so you get the help you need before your deadline.

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Thanks everyone, overwhelmed with all the help from you all. I will be spending the day reading everything that has been highlighted. I am really struggling to understand why these are the lengths you have to go to, to get what you need. I understand that some people abuse the system but they should know by the applications who are genuine and can back up their disability with facts and proof. Thank you everyone for your help

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Not sure how true it is but my understanding is that pip is one of those vital social safety net services that has been farmed out to a ‘for profit ‘ private company which is partly paid according to the number of claimants who are denied payments.

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Hi Festie PLEASE DON'T GIVE UP I too got zero points for pip, turned down for mandatory reconsideration, failed at tribunal as they only wanted to know about one of my least affected illness, Reynaud's also after proving my assessor lied on her report, going on about how I can drive around to get to places, apparently in my 'invisible car' , I don't even own or have access to a car. All this led to extreme suicidal thoughts as you can imagine.

Because of everything I had heard I thought your not getting away with this, this is exactly what you want, some one less on your books. So I applied again, I went from getting zero to high rate for care and low rate for mobility. I learnt that having photocopies, cost me £20, of your GP medical notes was invaluable for medical evidence as they DO NOT ask any health professional who you deal with for any evidence. Your GP has copies from all consultants etc. Also have some one with you during any assessment, my son came with me as he had to carry my nebuliser as I am unable and yes get upset your entitled to cry when you have such debilitating health conditions.

My health has not of course improved and never will but at least I can now get taxi's out especially to visit my elderly mum and get to hospital appointments without having to worry.

Good luck, let us know how you get on

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Hello all, thanks for all the support. I applied for a mandatory consideration and failed. Now I am waiting for a tribunal hearing date. I'm dreading it! I have just had a work capability assessment as well and am waiting for the results on that. It's so stressful I sometimes think of just stopping it all! Since all this began I have become very depressed and saw my GP and broke down when I was telling him how I feel. He changed my antidepressant meds but it hasn't made much difference. I wish this was all over, it's so unfair. Thanks all

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Pip is awful and takes away dignity it's suppose to help us have independence but it's not working. They do lie and add things in their reports that are bogus. I have to appeal I can't walk anywhere without getting out of breath or do day to day things. I have found it hard to prove as my doctor does not live with me. Diognosed with severe copd and osteoporosis in my spine. How can they possibly think this is not disabling. Keep fighting them everyone the more we do fight maybe we will beat them. I am so shocked the way they treated me 0 points also. I am fighting them.

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Nik5769 - this thread is over a year old so it is better to start a new one as it is less confusing. Also, people can then reply to you specifically.

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