Hello, I'm very new to writing on forums but here goes... Well I'm 45 and was diagnosed with alpha 1 emphersyma about 8 years ago and had to leave work 4 years ago as my job requires meet to be able to run !! Since leaving work it was always advised that I would require heart and double lung transplant. However recently I was also diagnosed with Thyriod cancer and have since under gone treatment and surgery for that. I'm 12 months in remission but have now been told that NICE guidelines are cancer free for 5 years but transplant team say I've not got 5 years in my lungs!! I write as I've just come out of hospital after chest infection and been placed on o2 to protect my other organs. That's me. I've enjoyed reading the support and advice that is given on here.
Thank you for reading 😀