Lung transplant.

[Bobbi6]

My family doctor and my cardio therapist have asked why I am not on a transplant list. I have to never thought about that and my doctors have never mentioned it.Has anyone on here had a long transplant and how are they now?

[sibkev]

oioi i had mine 11 03 2016 thats when my new life started i wld always say have it done id do it all again if i had to its brill i can walk now take me dog etc anything you want to know plz feel free to ask

[Bobbi6 in reply to sibkev]

Do you think you'll recover enough to go back to work? I'm ok if I don't get that well but I want to be well enough to take walks and possibly not need oxygen.

[sibkev in reply to Bobbi6]

im nearly 60 and was a butcher so no cus of immune sys is so low now im not planning to i took ill early ret and with what ive been throu i want to enjoy life a little i so very nearly lost it but some do ive met them at clinic you need to be a little younger than me i think

[Hidden]

Hi if you type this into the search box previous posts and replies will appear. x

[Bobbi6 in reply to Hidden]

Thank you. Didn’t know that. 😜

[southy]

I've been on the active list 15 months now, I got called up last month but I was just stand by so I didn't get it but I put it down as a good experience. My consultant had been asking to refer me for transplant for a couple of years before I agreed to be assessed. I wish I had earlier because I feel my deterioration. You should get assessed and then make your mind up.

[Bobbi6 in reply to southy]

That is what I was thinking I should do. Thank you for the extra confidence that I should do that. I was really sick in 2012. I've improved about all I think I can. My mother, who is in her early 60's gets around better than I do. I've been pretty accepting of my condition. My therapist says I'm too accepting now b/c I'm 43 and should be living life better than this. So thank you, I see my pulmonologist November 2nd. I will see if she will refer me for a evaluation.

[Snodgrass1]

Unfortunately I found out and it was confirmed when I went up to the London Hospital in Feb this year that if you are over 65 the chances of getting a transplant are zilch, eg your to old. So that's me, why I wasn't told this back in 2004 when I was diagnosed with Alpha 1 is beyond me, but there you go. Now there is nothing they can do for me. Yep, I will continue with the puffers, tablets and Oxygen to give me some quality of life, but I will slowly deteriorate and then pop my clogs. So if you are under 65 and have COPD get your name on a list ASAP for a transplant and don't get put off. In case you are wondering I am a non-smoker so the word fair is always prefixed by un, but that's life

[Snodgrass1]

If it's bring suggested, get on the list as if you wait until your 65 you are classed as too old and you can't get on a list. I was told this in Feb this year up in London, and I am now 68. You would have thought I would have been told back in 2004 when I was diagnosed, but no. Green rub. Also add I am a non-smoker, so double whammy. Life is not fair so if you have COPD take what ever is being offered and ask for everything. In fact demand as its your right

[Bobbi6 in reply to Snodgrass1]

I’m so sorry for your situation. I don’t smoke either, never have. I don’t want to be this way forever. Bc if I feel this way at 43 what will the 60s feel like? Thanks for your advice.