Hi everyone someone posted to me recently looking for advice and I can't find what I've done with it! Please send again so I can help; it may have been Churg Strauss related.
Well had 1st Lidocaine infusion for pain in hospital yesterday to hopefully get 2-3 days (after 16 months of pain 24/7) respite from pain, but sadly only numbed all over body pain from this auto immune Eosinophilic asthma complication for 12 hours! Also Methotrexate and now Azathioprine on top still not achieving any kind of remission from this disease. Warned by Rheumatologist some Churg Strauss patients never respond to treatment and as my kidneys are not in good shape either think Cyclophosphamide might heading my way arrgh! See my renal consultant beginning of next month to see what can be done about blood and protein in urine for last 8 months and how much kidney damage done. Please wish me luck I need all I can get but still smiling and enjoying the best I can each day xx