Hi Aland, I understand completely where you are coming from. I had a diagnoses of emphysema / copd which I had been managing successfully for over 12 years. Then I was very ill this past winter, I got pneumonia, I had 6 lots of one week courses of anti biotics. I pushed for referral to a specialist but 1st I was referred for a CT scan. The result of that was I had pleural thickening and bronchiectasis as a result of the pneumonia I believe and whilst I knew it was important to clear any lung infection quickly the docs didn't seem to have the same concern. I had sputum samples tested one came back with flu virus the other 2 came back not active even though the sputum was very discoloured.
I had several chest xrays all showing a problem.
My advice to you is:
Say one week course ABs are not working
1) *Ask for a stronger 2 week course. Keep a copy of all the ABs you have had, if one week course or more name of AB etc.
2) *Ask for referral for a CT scan.
3) Ask for a referral to see the lung specialist.
I have been ill for the best part of this year, and my lungs are still not as good as they were before I became ill.
I went from flu, to viral bronchitis, to flu again then pneumonia it was just awful the mucus needs testing if you are bringing a lot up and it is best to get it off your chest literally. Ask the doc for a sputum pot with test form so that you can get the sample to the hospital quickly, check if you can take this to the path lab yourself or perhaps you can arrange for someone to take if for you.
My local hospital said its ok to take it to the GP surgery so they have it soonest before mid day. But the BLF helpline nurse told me for bronchiectasis for instance that some bugs will die if they are not tested soon enough. (Hopefully you don't have Bronchiectasis yet, but certainly you need to try and clear any lung infection soonest, if your sputum is discoloured, creamy, yellow, green, brown in colour its likely to be an infection *)
Drink plenty of water and eat what you can, fresh fruit and veg and fresh salmon and chicken. Soup and dry crackers anything to keep the body ticking over.
Do phone the BLF helpline for further advice and support.
I hope you can get on top of any infections quickly and that you are able to move around some and eat some. Hopefully doing so you can avoid any further complications.
Keep in touch and I hope you are feeling tonnes better real soon.