I am new here for the past few months I have been suffering with shortness of breath on exertion that has been getting slightly worse.
I do have Ovarian Cancer and have had three lines of chemotherapy. I am on a clinical trial for a drug called trametinib and one of the side effects is that it can cause heart and lung damage. I do have regular CT scans of my chest, abdo and pelvis and there has been no lung damage reported in these scans. I do have a small pleural effusion on my right lung and since being on the trial I have developed a left pleural effusion. I have regular chest x-rays and these pleural effusions have remained stable so my oncologist does not think they are resonsible for my breathlessness.
This last month my ribs have been achy especially during exercise and there have been some sublte changes to my hear output on my echocardiogram. I have had a couple of lung function tests that showed some 'stiffness' but that I was able to transfer oxgen from my lungs to my blood. My oncologist could not really explain what lung stiffness means but then he is a gynaecologist. They have agreed to refer me to a respiratory specialist and they think its a number of things all contributing to my shortness of breath. I have also been suffering with a lot of mucous at the back of my throat and I get crackling when I lie down and I regularly wake up gasping for air.
I am worried that it could be something like pulmonary fibrosis but I am assuming that would have shown up on my scans? I suppose I would like some advice on how to get the most out of my appointment with the specialist.