British Lung Foundation

Christine

Good morning lovely people, I am in awe of the support and suggestions offered since my initial post yesterday, many thanks to one and all. I have as mentioned seen the doctor many times without Christine being there, initially the doctor thought of anorexia, also that it was perhaps "all in her head" from being a working lady up to last years fall, to being house bound for a spell, but all along unknown to anybody this dreaded C was eating away at her, by the time it was diagnosed it was too late. I have tried tempting her with every food under the sun in recent months, nothing. One tiny help to me is full cream milk + 2 sugars in her tea, although fluid intake is pitiful now. Somebody mentioned a name for being unable to swallow? That seems 100% right, although no medical person has said it to us. It was suggested by the Dietician admitting Christine to hospital and feeding via a tube, but I know for a fact Christine would not agree. She is happy in her own wee house without fuss, says she has no pain which is a blessing in itself. I thought I was a strong person but heavens above this is hard! So many ex workmates ask after her and promise to call, but never do, so I do not tell her now for fear of upset. I do wonder about somebody losing the will to live, refusal to get dressed for weeks on end, simple things like going for a drive on a sunny day round our beautiful coastline, shopping, she loved shopping!! Well another day has begun, she has just got up bless her, cheerio for now............

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Dysphagia is the word you might be looking for . I hope you have some sunshine up your way today and maybe it will give her the strength to get out for a while with you in the car . If not feet up couch and watch a film with a glass of babu lol good luck with things xxx

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Hope you get some sunshine and Christine might just go for a little dive out, or just sit and relax. Hope you both have a good day love Bernadette 😳 xxx

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Thinking of you both and sending positivity your way. Love and blessings to you. Xxxx

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Davey Mac another suggestion Frank buys milk powder creamer. And adds it to my coffee as well as the milk you can also add it to smoothies etc my niece works in a care home and she tells me they make a jug up and add it to full fat milk also mashed potato. But I would recommend smoothies take care best wishes to Christine Margaret

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Daveymac,it was me that mentioned dysphargia and i am posting you a link to read about it.

The Salts team(speech and language therapy team)at your local hospital could easily arrange a home visit and the test takes literally minutes to.

nhs.uk/conditions/Dysphagia...

cheers...........skis

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I hope the day is going well for you both. It would be nice if a few of Christine's workmates visited her, listening to them chatting about their activities and outings might make her reconsider having a trip out occasionally and even if it didn't, it could be a pleasant distraction from everyday worries. Also, providing there are no serious swallowing issues - as we ladies generally have a thing about cake, a little treat with friends might be tempting enough to get her to try a little. It's good that she's happy and not in any pain though in a way, that must make it harder for you - to see her (I imagine) more or less as she normally is, but unwilling to do things that she'd normally do. Thinking of both of you, wishing you well.

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I was thinking about you guys yesterday, and wondering if perhaps Christine THINKS she has no control over her life anymore and this... not wanting to eat is her way of taking back a little of the control. Maybe, encouraging her to eat by saying WHEN (not if) you are stronger we could visit a favourite place for afternoon tea and buying her a new dress or pretty blouse to wear for the occasion. I think that when a person has nothing to look forward to they do tend to give up on life. Take care. X

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