Home again

[Time_2_drink]

Hi. Just to say I am Back home I have started to answer some of your kind posts thank you I will carry on tomorrow .I was Told that I was going home this morning at 9am just had to wait for medication my sats have Been falling all day and heart racing again nobody seemed concerned ?I told the Doctor that I was having problem with my Breathing and it was harder and harder to recover .Just Before 5am Medication arrived we were just about to get in the lift when nurse came charging up problem some of medication missing so Back on to the ward Frank was given his tea saved him cooking for a change I got home and could not Breathe at all got on chair lift to Bathroom had to have nebuliser there took ages to recover and in the mean time rapid response turned up hospital arranged for them to come Twice a day They were concerned that I had been let out like this I said nothing surprises me anymore I Have mentioned the pain to Doctors there response was to put morphine tablets up .My arm is up like a egg where they have taken Blood I was told by rapid response to phone 111 IF I Feel unwell I told them I felt unwell when I was discharged I Hypoxic and also respiratory failure again Don't know what else I can do other than scream and scream like violet elizabeth lol

[judg69]

Margaret, if gets bad in next few hours, CALL 111. Period. Kindest Wishes, judg69

[Time_2_drink in reply to judg69]

The a Nurse Been this morning I go to Breathe easy on a Monday I asked the hospital if it was ok to go they said yes. .I had a bad night and this morning took over 3 hours to get ready from 7am my heart rate was 135 and sats 74. The nurse came just after they started to come up she stayed until they up to 88. Then after she had gone they fell again had real struggle to go to Breathe easy. They took my sats there and I'd dropped to 62 so came home and waiting for the nurse Best wishes

[Damon1864 Volunteer in reply to Time_2_drink]

Hope you are ok Margaret, you are having a time of it. I really hope things start to improve for you soon. Keep thinking positively, and please make sure you get all the help you need. Thinking of you my dear friend love Bernadette 😳 xxx

[Time_2_drink in reply to Damon1864]

I am trying my upmost to think positive but just worn out with the stress of it all I've tried asking for help deaf ears come to mind love Margaret xx

[cosykitty]

No no no Margaret, I am horrified to hear this!!! You and Frank cannot be left to deal with this alone. Rapid response or no rapid response, I can't help but feel you are being let down, badly. I am furious for you. You make sure you call 999 if you have to. There are echoes here of what I endured with my precious Mother, and I am so so upset to hear they've discharged you like this!!

I will be thinking of you xxxx

[BSA-3 in reply to cosykitty]

I couldn't agree more! You must ring 999 !

[Time_2_drink in reply to cosykitty]

Thank you for your kind post the hospitals really don't want to know they were going to discharge me Friday then Saturday hung on to me till Sunday night Sent home with one days anti biotic and steroid absolute rubbish xxx

[Time_2_drink in reply to cosykitty]

Thank you have Been trying to go to Bed since 9 couldn't get Breathing under control and pain playing up had morphine tablets upped at the hospital But always another problem to contend with it just goes on and on hoping I can get to hospice Because I get more help there and can speak to nurse practitioner and hopefully see the counsellor if I can pull myself round sorry to be such a pain just having really rough time again xxx

[Billiejean_2]

Hi Margaret, please don't feel you have to reply to every message and PM as it would be exhausting for you. You give us updates here and that's more then enough.

I felt angry at them sending you home but if the Rapid Response people come twice a day, then at least it means you and Frank have someone to consult and discuss symptoms, sats etc. Maybe they feel you'd be less stressed in your own home but if that's not happening, then keep letting them know.

I really laughed at the reference to Violet Elizabeth and 'I'll thcweam and I'll thcweam, and I'll thcweam'. Did you used to read the 'Just William' books by Richmal Crompton, or maybe it's in TV over there. It's amazing that you can crack a joke with all you're going through Margaret, I admire you so much

Hang on in there. Xx

[Time_2_drink in reply to Billiejean_2]

Hi Billie Jean I Did read the just William Books then it was elegised either 60 or 70s I Do like to reply to post when possible so I will steadily plod on .I asked at the hospital why I was being snt home without issues resolved was told you have oxygen at home so there you have it best wishes Margaret xx

[Damon1864 Volunteer in reply to Time_2_drink]

It's disgustingxxc

[moogle]

Sounds like they just wanted the bed Wish I could do or say something to help

[Time_2_drink in reply to moogle]

Just knowing someone understands helps thank you

[casper99]

I'm sorry to hear your suffering so much. It's so unfair for you to be packed off home, before you we well enough.

I really hope you get some help asap. xx

[Time_2_drink in reply to casper99]

Get sent home so they can re admit other patients who been sent home to soon xxx

[Damon1864 Volunteer]

Hi Margaret sorry to hear you are still feeling unwell, I am so angry at they way you have been sent home before you are well enough. Please ring 999 if you feel you need to its your health they are messing with. Both you and Frank need the support. You take care. Love Bernadette xxx

[Time_2_drink in reply to Damon1864]

Waiting for the nurse not holding my Breathe that anything will be done oops haven't got a Breathe to hold lol xxxxx

[sassy59]

You have had some great replies Margaret. Such caring people on here and we are all rooting for you.

Please dial 999 if you feel any worse and take care. Scream all you like lol so long as you are heard.

Love to you and Frank. Xxxxx

[Time_2_drink in reply to sassy59]

Very kind and caring people I am slowly working at answering my posts I do appreciate them and all of you for support love Margaret xxx

[Ergendl]

You and Frank are in my thoughts and prayers.

[Time_2_drink in reply to Ergendl]

Prayers are very welcome thank you .

[Shirleyj]

I can't believe they let you come home. Are they arranging help at home for you? Take care and ring 999 if you feel bad x x x

[Time_2_drink in reply to Shirleyj]

Nurse coming in today again then Thursday then have to wait for Matron she was just reassigned the other week did one visit then on holiday till 20 sept will only have her for a couple of weeks then Back to zero xxx

[Damon1864 Volunteer]

I know exactly how you feel Margaret, hospital sent me home with a couple of days of meds and I have had all my medical support removed. It's disgusting the way we are treated xxx love Bernadette 😳

[judg69]

Margaret, I know I sound like a broken record, but again , if your SATS hit the 70's again, please , please immediately call 999 and have Frank request a different hospital. I do not believe the last hospital did anything much at all. Kind Wishes, judg69

[Time_2_drink in reply to judg69]

It is difficult to get another hospital James cook is the major hospital in the area. I told nurse when she came about them dropping again although Doctors at hospital were not bothered either Best wishes

[Damon1864 Volunteer]

I agree about your low days and phoning 999. I would certainly want to go to another hospital. Love Bernadette 😳 xxx

[Time_2_drink in reply to Damon1864]

Not another hospital that could go to James cook the major hospital xxx