Listed

[Hacienda]

Hi, I'm new here, Just to say hello and looking forward to reading all the helpful advise which I have been looking for. I am Copd, On the Transplant List( over 1 year) for Double Lung Transplant, just waiting now. xxx

[mrsmummy]

Hi Hacienda and welcome to the forum. We have other members awaiting transplant and I wish you luck with it.

[GeorginaS]

Hello and welcome x

[Pam1952]

Hello Hacienda, and welcome to the group. Wishing you the best of luck and hope that your wait isn't too long. I look forward to hearing more from you soon.

Take care

Pam XXX

[girliegirl2012]

Good morning Hacienda! Welcome to our club! I like you, was thrilled when I found this support forum. Everyone here is so supportive and caring. We all have experienced serious illnesses and still dealing with them. Our sharing with one another is very therapeutic. I believe you can learn more from patients sometimes than from a book. These people have walked down that road. So, you come along with us. We will all hold hands and help each other. We will be looking forward to hearing from you soon. You will just do like the rest of us....jump right in with both feet! Welcome Hacienda.

[Sillysausage234]

Welcome to the site hope you get sorted sooner alan

[casper99]

Hi hacienda and welcome. I hope your transplant comes soon for you, one of our most inspiring member's, Dall05 has been on the list for a good while and we're all rooting for him, as we will you. xx

[Delahunt in reply to casper99]

Hi 👋 Casper am new & making my aroind the forum I to have sever copd right upper lobe changes Fv2 30prcrnt . Local hospital consultant is referring g me for consideration off lung transplant . So waiting & attend plumber-hab breathing pursed lips & aim am walking & my goal is to run hopefully in the future . Hope yourself is well & breathing good . Everyone's posts read beautifull & magic & ecorsgmrnt off support to each other is over ehrlmi h & inspiring & I am glad I joined x good luck to you & every one & keep strong smile x Bernadette x

[Hacienda in reply to Delahunt]

Hi Bernadette, Yes, I have just read all the posts, very encouraging and helpful. I hope you get your News Soon, I go every 4 months to the transplant hospital to make sure I am still ok for transplant, so far I have been, but as time goes on you do get a bit "fed up" with waiting. But being positive it is only a fleeting thought. I'm off to my Exercise class shortly , I have to keep exercising to keep Mind & Body Fit for the Operation...Good Luck to you x

[Delahunt in reply to Hacienda]

Aww Hi Hacienda thankyou . Entourage your day excercise s ps which transplant centre you under x am whynshaw Manchester x Bernadette x

[Hacienda in reply to Delahunt]

Hi ,Bernadette, I'm in Nottingham, my Nearest Transplant Hospital is QE Birmingham.. I have finished my 1 hour of exercise Class which was Good xCarolx

[casper99 in reply to Delahunt]

Hi Bernadette, nice to meet you. You've come to the right place for support.

I'm moderate COPD and not too bad at all at the moment.

Good luck on your tests xx

[Delahunt in reply to casper99]

👋Casper99 thankyou for welcoming me & your time to reply to me . Most off all I am pleased to be on board with yourself & all the members . It's comforting & meant a lot to hear from you & I do hope you continue to feel good well & smiling . However at present I am glad I am across this forum & find it is supportive & that we are all in the simuliar boat & that we can relate & keep each other strong positive on good days & bad . I have had bad week hope to get back up as we do xx look out for you thankyou Casper x best wishes keep well x Bernadette xx

[casper99 in reply to Delahunt]

I hope you feel better soon, I'm not having much trouble breathing yet, it's my other problems that are causing me problems. But, hey ho, it is what it is.

You'll like it on here, there's always someone around to help cheer you up or with good advice, jokes too, haha. It's brilliant. xx

[Hacienda in reply to casper99]

Hi casper99, Thanks for kind reply. I have been reading your Blogs. What is FEV1? Sorry I must be stupid seeing that I'm more advanced than you at Transplant stage and Regularly go to Hospital for check ups, think I'm not asking them the right questions..xx

[casper99 in reply to Hacienda]

Hi, I'm not very knowledgeable on the in's and out's of our lung test results but, Fev1 is what they use to say what stage we're at.

We blow in the little machine at the yearly reviews.

How you feel on the day can give a low reading and it's also well known that two people, can have the same reading yet, one can be much fitter than the other, breathing wise.

Exercise seems to be the key to better breathing, not that I do very much exercising myself. Haha. xx

[Hacienda in reply to casper99]

Ha Ha, They probably never told me as I was too far gone and couldn't raise a Puff...at that time. I'm Learning a lot on this Forum and coming across a lot of medical terms I'd not heard of. It all Helps, as I see my local Lung Consultant in September, I will write a long list for her to Explain....XX

[Hacienda in reply to casper99]

Thank you Casper, Just finding my Way round this Forum. Thank you for your Kind words xx

[Delahunt]

Hi 👋Hacienda just read your post & wanted to offer my hand & best wishes keep strong & don't give up hope x there is a little more info in my posts in reply I made to ( Casper ) also other members who have been lovely & the forum I have gained inspiration & find it supportive all in simuliar health related conditions . I am for transplant listing & keep positive & do love life so am not giving up & I will. Hold you up with me hope to here from you xx best wishes & I do hope that life is & has been treating you kinda at the moment with your lungs x 👍🏻X Bernadette xx

[Dedalus]

Hello and welcome

[Caspiana]

Hello Hacienda . Welcome to the forum. I am also listed. Single lung for me. Nice to meet you. xx 😊🍁

[Hacienda in reply to Caspiana]

Hi Caspiana,

Nice to meet you also, My Friend had a single LT. Since having COPD, I joined The QE & Freeman Hospital Groups, and I am Learning a lot. Everyone is so Different Before & After Transplant. Hope I can be of help on here. XX