I AM GOING TO BE BLUNT, I AM ON 15LPM OXYGEN, 24/7 AND NOW, ONE YEAR ON ONLY GETTING INTO THE 78-80%SpO2 AT COMPLETE REST. I HAVE IPF RATHER THAN COPD
Here my view having got to a point where there is no more oxygen that I can use. Being on oxygen 24/7 is hard, but, generally the other choice is damage to the body. I have slowly dropped below 88 down to around 78-80 and already noticed that things aren't as they used to be.
I used to be realy sharp mentally, now things need to be checked several times, e.g. calulations for the taxman and missing words in emails. I have also difficulty remembering things.
Any bacteria, or, virus seems to be attracted to me and my bodies defences seem to be unable to defend itself. So various drugs are used to help clear up these problems which invariably wipe me out, reducing my appietite.
I can no longer get out of bed or even roll on my side, without the oxygen level dropping into the 50's. This leads to heavy coughing, a hot flush and my breathing becomes panicy, I have to use a self devised technique to bring my breathing back under control and get my oxygen level back up; it s very scary.
I know this sounds prety despresing, but, I was given months to live and it is over a year on. In that time I have made friends with many people that I would never have got know, discovered some wonderful new board games (a major passion of mine) and been able to plan my funeral. I have had time to sort out my finances, support our daughter and son-in-law to buy their first flat and our son to get a place to rent. However, for me, the most important of all is that I have been able to spend time with my wife.
This may not seem like much to some, but, just after I was diagnosed a colleagues partner died suddenly in the night without warning. She was left with nothing and no chance to say goodbye. So I consider my self incredibly lucky.
Here comes my advice. Do as much as you can today, which sounds like you are doing with the yoga and the exercise, enjoy what ever new experiences you can, for tomorrow you may need to find a less stressful thing to enjoy. If to do this, you need oxygen 24/7, then I suggest you use it.
Its a tough situation, but, try and find something to laugh at each day; it makes life better.
Best Wishes tenter