In the past 2 years my O2 exchange rate has dropped from 67% to 52%.
I had no lung problems before I was struck with Pneumonia in 2008 - which put me in a coma on life support for 5 days (I was not expected to survive) - This left me with a couple of lung problems - namely Bronchial Intersitial Lung Disease and Chronic Bronchitis - 2 major biospies confirmed this. - (no asthma or COPD)
Those were the facts until I moved to a new area - earlier this year - I had a CT scan and my new 'consultant' simply said everything was clear - except mild Emphasyma (excuse spelling), I was then discharged back to my gp.
Since then more than 2 reputable sources have told me that once you have BILD - it does not simply go away! - Especially with the drop in my O2 Trans rate - Can anyone help clear this up please - I am totally confused ( As normally happens with these things) - Thank You so much.
Point 2 . With a documented Transfer rate such as mine - what would be expected in regard to activities / walking etc?......
I struggle all the time - I always end up so tired I fall asleep, slur my words and begin to trip over my own feet - Is this usual??
How can I then get this message over to others - Doctors, my family, etc???
I am so grateful for any and all help