Still on the list: Hi, don't post often... - Lung Conditions C...

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Still on the list

southy profile image
16 Replies

Hi, don't post often but am always here, been on the list for double lung transplant for 11 months now. During that time I have deteriorated, I am now on 16hrs of oxygen and am not feeling as strong, yet I go to pr every week and am doing good. I wish I new when that all important call would come, I'm not disheartened but it is frustrating. Just being on the list is so hard, starting to feel like we're all walking on egg shells 😢

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southy profile image
southy
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16 Replies
sassy59 profile image
sassy59

Good to see you southy and l hope that call comes soon.

Good wishes to you. Xxxxx

southy profile image
southy in reply to sassy59

Thanks xx

Lilian226 profile image
Lilian226

Hope you hear soon Southy. Lilian xxxxx

southy profile image
southy in reply to Lilian226

Thanks x mee too x

dall05 profile image
dall05

Hi Southy,

I've been on the list for 4 years now and I remain positive that my day will come when the time is right.

keep the PR up and stay as fit as possible so when the time comes your ready. 😊

Tony.

southy profile image
southy in reply to dall05

Omg could I be waiting that long? I really think it would be so stressful, is there a reason behind it xx I am doing everything physically possible to stay well xx

Billiejean_2 profile image
Billiejean_2

I really hope that the call comes soon Southy. For you and for Tony and anyone else here that's on the list.

southy profile image
southy in reply to Billiejean_2

Thanks x

skischool profile image
skischool

You and Tony keep on rocking.you are both doing really well in your adversity and with such positive attitudes,wishing for that call for both of you.respect from skischool

southy profile image
southy in reply to skischool

Thank you x

I really hope you both get your lung transplants very soon. Fingers crossed.

southy profile image
southy in reply to

Thanks x

Sheilab123 profile image
Sheilab123

Hope you get that call soon Southy, and for Dall and others waiting. Take Dalls advice, it's usually good! Xx

jackdup profile image
jackdup

I wish both of you the best and a phone call soon. I know what it is like waiting a couple of days for test results so can't imagine what it must be like for you not knowing how much longer it will be.

Toci profile image
Toci

Lovely to see you again, Southy. Keep on keeping on and remember that whatever happens will happen, whether we worry about it or not. :)

southy profile image
southy in reply to Toci

Your so right, I still am so positive but impatience is creeping in! 😅

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