Home Ventilators....

[Dmactds]

Just found the info below at the link provided; wondered if anyone in this group has experience with this and how it has or has not helped:

lungdiseasenews.com/2017/05...

"...Although the treatment of patients with COPD and acute respiratory failure with noninvasive ventilation improves outcomes, persistent hypercapnia (high levels of carbon dioxide in the blood) after an exacerbation is associated with high mortality and early re-hospitalization.

Now, a team of U.K. experts led by researchers from the Lane Fox Respiratory Service based at Guy’s and St Thomas’ in London investigated hospital admissions and mortality and the effect of noninvasive ventilation added to home oxygen therapy in COPD patients. The clinical trial was called HOT-HMV (Home Oxygen Therapy-Home Mechanical Ventilation; NCT00990132).

The trial included 116 COPD patients who were divided into two treatment groups: home oxygen therapy alone (59 patients) or home oxygen plus home noninvasive ventilation (57 patients)...."

[Watfordgirl]

Interesting outcomes! I've got very severe COPD. Three years ago I was admitted with dehydration (don't ask!) and diagnosed with respiratory failure and told I was retaining CO2. I was discharged with NIV which for the first 18 months I used with O2 ar night. I no longer need the O2.

I've always had lots of chest infections but so far have never needed admission to hospital with one. They are slightly less frequent and less severe with the NIV machine.

Don't seem to be that typical as far as this research goes. Keep well. Sue x

[Grandmatojack]

I retain carbon dioxide and after over 12 months of going to hospital to have the NIV I was referred to Wythenshawe hospital where I was assessed for a home NIV. Since I have been on this I have only had 1 hospitalizations and that was only as a precaution really. I use mine with 24 hour oxygen and the NIV for roughly 14/18 hrs a day. Feel like a new person. Can't get out much but at least I'm still here to watch my grandchildren grow up.

[Dmactds in reply to Grandmatojack]

Good on ya'...!!!

[mrsmummy in reply to Grandmatojack]

Lovely attitude.