I was diagnosed with Bronchiectasis privately by CT scan last September. The respiratory consultant concerned works both privately and in the NHS. My winter was miserable and after reading many posts on this site, I realised I needed to see a Bronchiectasis specialist, so I persuaded my GP to refer me to the John Radcliffe in Oxford......a super hospital and thank goodness I pushed for the referral. To cut a long story short, we had to start from the beginning again and 3 weeks ago I had another CT scan, they were expecting to see a worsening of my condition because of the rotten winter I'd had.....oh no, the scan did not show any Bronchiectasis! The doctors have said they need to see the original scan, but because it is out of area and in the private sector it is going to take time. They cannot answer my questions until they see the scan. They did say on the very rare occasions the bronchi tubes can repair themselves, but I do not believe in miracles, plus I am still having the same symptoms of 12 months ago....fever, lethargy, breathlessness, cough and thick sputum! My thoughts are the original consultant misdiagnosed or was given the wrong results! The John Radcliffe did say they would get to the bottom of my symptoms but I'm so annoyed/cross that so many months have gone by without a proper diagnosis.
Has anyone else come across a similar situation?