I have previously posted on the inadequacies of the NHS and its postcode lottery in terms of service.
Can anybody beat this,GP appointment early February confirms low SATs on air at rest of below 90% and accepted self diagnosis of SATs on exertion of levels as low as mid 70,s. Original COPD diagnosis by respitory consultant more than 12 years ago.Spirometry testing 6 months ago indicated very low fev levels and much diminished airway movement/transfer in lower lungs. Requested urgent or prioritized referral to Respitory consultant ,Result appointment late July.
Recent CB Gasses taken at home by long term conditions team indicated raised PH levels and non compensatory metabolic alkalosis suggesting need for O 2 therapy assessment for either LTOR or Ambulatory oxygen therapy which I have requested given low SATs on exertion. Result O 2 therapy assessment late August.
High blood pressure 24 hr monitoring requested 8 weeks ago,since been given meds which have stabilized BP thankfully but equipment was not available to do monitoring and when it did become available yesterday it was knackered with flat battery,dirty frayed cuff and also I was told they can no longer monitor 24 hr and only during the day and would I care to do some home readings.I am glad that i didn,t present with a Heart attack as i am sure Argos are right out of defibulators at the moment.
Needless to say I have now purchased my own portable concentrator for use on shopping/gardening or any other activity which lower my SATs,of course this is totally frowned upon because it is not prescribed though I think I have done enough research in respitory diseases that I can use this with due diligence and common sense taking into account over saturation and CO 2 retention et al..Before I am seriously moderated I will add the disclaimer that I would in no way recommend either self diagnosis and or self treatment. Sometimes frustration leads you to try to take control of a situation.
Sorry for this long moan and I should have known better from my local Trust which managed to finish of my wife in 3 months. but I get so frustrated seeing the good side of the NHS and the excellent treatment that a lot of people within this site have and are receiving..
On a lighter note next week I will be mainly doing routine bypass surgery.occassional Frontal lobotomy's and run of the mill home kidney transplants.
Best wishes to all.