my copd

[Bjayr123]

copd

i was diagnosed with copd about 7years ago i smoked and i also worked in the hosiery which i am sure didnt help, any long story short i stopped smoking about 4/5 years ago but i am bad i cant do anything without getting breathless the doctors didnt really tell me anything about it and i just plodded on once a year they asked to see me for my spirometry test and that it is i have been getting massively worst and tried to find out if i could do anything myself to help but got no answers then 4 weeks ago i got a letter about a trial for copd patients and so i thought im doing that and i am so glad i did i now know i have emphysema and i have learnt some breathing exercises and also theres prob an operation i can have and at the end of this trial i will be booked in for rehabilitaton which has made me think that there is light at the end of the tunnell i am 57 years old and the slide is slippy

[Damon1864 Volunteer]

Hi that's fantastic news, hope if you have the operation all goes well. I wish I could get on one of those trials. Good luck, take care 😉xx Bernadette

[Bjayr123 in reply to Damon1864]

just go online and see who carries out trials in your area for copd and just ring them it will be the best thing you ever do because once your in there care they look after you i would not be getting any treatment if i hadnt done that trial the doctors have no idea they just fob you off with an inhaler or two i am now going for tests of all sorts and im hoping for lung volume reduction op or the new valves so i feel like theres a light at the end of the tunnel but please just go online and make your self available you can fill in a form then they keep you on there system and if a trial comes availabe for you they will send you a letter.

[Nanaeal]

Afternoon Bjayr. It's great news that you have at last four d so.e support a more accurate​ diagnos & a management plan.

It very annoying that of you've smoked & develop a Respiratory problem, there's an automatic assumption that's it's COPD

Hope you continue to make progress

[Carnival567 in reply to Nanaeal]

It's also very annoying when they assume you smoke because you have a respiratory problem! I have, fortunately, never smoked but still have lung disease.

[Nanaeal in reply to Carnival567]

It definitely is.

[shadow4me]

Im so pleased for you has I have been taking your same journey for the last couple of years ,Who gave you this trial is it in the UK x

[Bjayr123 in reply to shadow4me]

sorry for late reply had lots going on yes im in the UK but you can ask your doctor about any trials going on in your area i should think

[lKeith]

Bjayr123,

Hi Sorry to hear thatn you appear to be going a bit downhill but you seem to have found the right treatment. Breathing techniques are often key to helping the condition.

You refer to an operation at the end of your therapy, what is that operation? I am a lot older than you but am still on the look out for ops that may have a good effect. Also where are you going for the treatment?

Keith

[Bjayr123 in reply to lKeith]

its a lung volume reduction op apparently they cut out and staple the bad bits of your lung and leave you the good bits so fingers crossed im suitable

[lKeith]

Bjayr123

Good luck with assessment. Please get back to me after the appointment to let me know how it went.

IKeith

[Bjayr123 in reply to lKeith]

will do mate, i am also going to do the H2O2 therapy i did it a few years ago i was ingesting 35% food grade and there was a massive improvement but i just stopped silly me but know you cant get the food grade 35% so im going to try the 3% in a spray and inhale it so fingers crossed this works just as good as i get worse day by day so been online all morning looking and learning so iv order it and im going to have a bash i will let you know

barb