I have recently developed a symptom alongside many others which closely resemble Fibromyalgia, but that's not been diagnosed as the GPs seem to have written me off.
I have a diagnosis of Asthma from my childhood, but it has not been an issue really for a very long time and I seem to have grown out of having attacks. I am supposed to take Fluticasone/Salmeterol (Seretide) preventer and Salbutamol (Ventolin), but I have such severe and bizarre symptoms, it makes all of these, including the breathing problem, worse. The symptoms I have range from level 10 muscle and joint pain, severe fatigue (enough to keep me in bed 6 days out of 7 now), an extreme feeling of vibration inside my body that nobody else can see or detect, burning sensations all over my body etc, but the breathing one is new (came on around March time). I have the constant sensation of movement inside my body, and if I use anything with a steroid in, it sends it up to unbearable levels.
When the episodes come on, there is no obvious trigger, I can be happy and enjoying myself, then all of a sudden my throat and chest feel as if they are constricting, my body starts involuntarily gasping, every muscle in my neck, back and shoulders is involved and since it began, I'm getting awful pain in all those muscles.
When I breath in and out it feels as if air is being forced through my larynx, breathing in sounds sort of like 'RAHH RAHH THOOAYYYYYY' and out like 'SHHASSPPPPP & SHEKT' etc. It's so bad I get no sleep obviously, but it also effects my husband too. I have no control over it. About 9 out of 10 breaths out end in a long, painful dry wheezing cough too.
I have had a chest xray and nothing showed up. I have been to A&E four times and been treated like a time waster because again, nothing shows up on tests.
One thing that does stop it for a few hours is the reliever Ventolin inhaler, but my GP surgery will only give me one every two months and told me I should only need to use it once or twice a YEAR. They do not understand why I am unable to use the preventer.
I have also got severe heart palpitations and am getting a 24 hour heart monitor next month. I doubt it will pick anything up.
I keep having to get emergency supplies of the ventolin, as although I've been told it's not asthma, it stops it and gives my throbbing muscles a break.
It feels as if air is not going into my lungs fully, like they're full of water or something.
When the episodes come on, my arms and legs tingle, my lips lose colour and my face flushes, this must be falling Oxygen levels, but it has never showed up on any test.
Is it really possible for something like this not to show up on any tests?.