Who to turn to?

Hi,

I need advice on who to turn to next.

My recent bodyplesmography tests continue to reveal restiction as well as obstruction in my lungs. Currently, I am being treated for mixed form asthma, sleep apnoea due to significatly elevated AHI due to sleep disordered breathing. I know that this is an umbrella term but my consultant seems reluctant to break it down further. Other doctors have said that my brain is not providing the signal to my respiratiry muscles.

CPAP is definatetly helping my sleep apnoea however my concern is more about my lung function tests which continously demonstrate restriction. I asked my respiratory consultant ( a young professor) if I have any other lung disease other than asthma and he responded after much deliberation with an unconfident sounding no.

Where does that leave me, the PFT results suggests otherwise ... Any suggestions?

5 Replies

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  • A 2nd opinion to which you are entitled mauschen. Ask if there is anyone else you can speak to. Good luck and hope things improve for you. Xxxxx

  • Good Morning Mauschcen, sorry you're having such a tough and worrying time. I don't have any advise, except to agree with sassy, just wanted to send positive thoughts & prayers Nan

  • Hmmmmm..... very unsatisfactory. There are conditions that can present as both obstructive and restrictive. Have you got the numbers for your PFTs? There are some knowledgeable chaps and chapesses here.

    Push for more clarification.

    K

  • I have tried to copy and paste results but it doesn't work therefore, I have typed them in in the format of what they should be/ what the actual value is. Hope you can understand.

    FRC should be 2.64L /actual 1.74

    RV 1.81L/0.86L

    TLC 4.77L/3.25L

    RV%TLC 38.34%/26.59%

    VC 2.81L/2.38

    FVC IN 2.81L/2.38L

    FVC 2.72L/2.11L

    FEV1 2.30L/1.89

    FEV1%VC Max 78.27%/79.27%

    PEF 5.98L/s /6.29 L/s

    MEF 75 5.33 /6.29

    MEF 50 3.66/3.48

    MEF 25 1.37/0.44

    DLCO 7.55 mmol/min/kPa / 5.20 mmol/min/kPa

    DLCOc 7.55 mmol/min/kPa / 5.04 mmol/min/kPa

    FRC 2.64L/2.40L

    RV 1.81L/1.53L

    pH 7.40/7.43

    a.CO2 partial pressure 38.03 mmHg/40.40 mmHg

    a.O2 partial pressure 77.93 mmHg/79.90 mmHg

    a.O2 saturation 98%/97.30%

  • Is there anyone who can shed light on my lung function tests. I am not asking for medical advice, I am only asking if someone else interprets the results the same way that I do.

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