New injection Mepolizumab (Nucala) - Lung Conditions C...

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New injection Mepolizumab (Nucala)

TuckBox2 profile image
8 Replies

Hi All,

I started on the new injection today Mepolizumab (Nucala), they stopped the Omalizumab (Xolair) in March, I was lucky not to have any exacerbations while not having the jabs, so I hope this is going to give me some relief and normality back. Will have to wait and see how long this takes to kick in.

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TuckBox2
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8 Replies
Pearly1 profile image
Pearly1

Hi Tuckbox. I hope it is successful for you.

Did the Xolair stop working for you, TuckBox? I remember you having to go into hospital, earlier in the year. I very much hope this new one sets you straight, as poorly controlled asthma makes life so miserable.

TuckBox2 profile image
TuckBox2 in reply to

Yes, I it seemed to stop helping me, since I had a bout of pneumonia I was having so many exacerbations and courses of steroids they thought Mepolizumab would help me as it is for the type of asthma I have. I have not had any problems yet.

lapper0505 profile image
lapper0505

please keep us updated on the benefits you realize from this medication..

kdr112 profile image
kdr112

I'm in the states. My insurance has refused to pay for the NUCALA although the allergist feels I need it badly. I am asking now for an outside review. I have high eosinophil counts in my bronchial specimens. Any suggestions?

TuckBox2 profile image
TuckBox2 in reply to kdr112

Hi Kdr, I can say that with Mepolizumab (Nucala) I only have 1 injection.

I know its a lot cheaper than the Omalizumab (Xolair) I was having 4 injections every 4 weeks, the cost to our NHS was £300 per injection.

kdr112 profile image
kdr112 in reply to TuckBox2

I'm still trying to get the NUCALA approved by my insurance. If I am self pay it will be 32k per year! I just don't feel I can do that. Please let me know how you do on the NUCALA. I have a high eosinophil count so it is suppose to be what I need. I'm very interested in your outcome.

Thanks for replying and I wish you the best!

TuckBox2 profile image
TuckBox2

One of the reasons I was swapped to Nucala was that I had high eosinophil count, I also had high reading with the FeNo test my 1st reading was 83, then I had a 54, I had a couple of readings of 12 & 13 but I have had recent readings of 40, 25, 39.

I have now had 4 Nucala injections (1 injection every 4 weeks) and I have had no ill effects from any of them.

I have had 1 bad day with my asthma a couple of days after one of my injections. I woke up coughing more than usual, took my morning meds and things calmed down a bit but my wife insisted I went to my GP. My appointment was at 11.50 when I saw the Dr (one I'd not normally see in the practice) I explained what had happened talking OK to him and he advised that as I know my illness if it gets worse to go to A&E, I then started to cough could not stop, took my reliever inhaler, still couldn't stop coughing. He said don't worry he'll get me to A&E and called an ambulance. The paramedic arrived 1st and gave me a nebuliser then the ambulance arrived, they continued the neb in the ambulance and I was able to talk to them better. I showed them my 'Asthma passport' which had all my details on and my meds etc. this helped a lot while I was having difficulty talking, and also saved a lot of waiting time at A&E to be seen. As my peak flow was staying above my critical levels and I self monitor at home (pf, bp & O2 sats) they let me go home and if things changed to come back in. Happily I have had no more problems since. I still don't know what caused the coughing either at home or in the Dr's surgery.

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